@heisenberg34 Hey and thanks for your reply and for sharing your experience. May I ask, do you have any secondary medication in your pump? Only having 1 med in there is often less effective than if you blend in a second one: I have a mix of clonedine and hydromorphone in my pump. I used to only have hydromorphone in there but once we added a strong concentrate of clonedine I felt better analgesic effects. Moreover, in my case the pump never managed to replace my need for oral meds. I still need orals in addition to the pump meds. I would never survive this hell with only the pump meds. One reason why your
doctor is weary of increasing the dose in the pump is because it carries with it
much risk. It is a much safer option to add orals on top rather than increasing the pump meds; doctors are dead scared of cranking the pump too high for good reasons; too much pump meds can easily kill you. But ask your doctor for some oral opioids for breakthrough pain. Also I’m sure they can increase the pump some to see if it works better. In comparison, last year my pain was so out of control that I got a spinal cord stimulator to aid with the pain.
In order for me to see a 6 on the pain scale I need all my 6 boluses and pump meds to work in symphony with all my orals and the scs stim. I think of them all as layers to mask the pain, and the more layers I have the better my pain is controlled. It sounds as if you experienced the exact opposite of that, when you lose one or more layer the pain will come back and hit you like a freight train. Crps pain especially will knock you down so hard it is hard to even get out of bed to go to the loo. If you have more questions feel free to dm me, I would be happy to discuss this further and even talk over the phone. Wishing you all the best, I know what you’re going through.