Hi @nigel7 and welcome to Connect! So glad you dropped into the conversation to share your experience with CCUS.

I can sure appreciate your desire to learn as much as you can about the condition. So it’s a good question about whether or not it’s worth the cost of having next generation sequencing panels run. It’s difficult to know if the results would give any valuable information vs the cost. It often helps to have a sounding board, so hopefully other members will share their opinions on NGS.

I recently read an article on CCUS that I bookmarked. You might be interested in read it too. Here’s the link to AHS Publications article on CCUS: To treat or not to treat. https://ashpublications.org/ashclinicalnews/news/6306/clonal-cytopenia-of-unknown-significance-to-treat

Have you discussed the usefulness of having an NGS done at this time with your hematologist?