@alexandercrps Thank you for your reply. The modern medical system is broken and many doctors are simply stupid. Prior to the pump I had had ablations, injections, patches, plus pills. I think the adverse reaction came as a result of the oh so many attempts to drug me without considering the repercussions. For me it was probably a form of sensory overload. that triggered my severe sensitivities. I am sensitive to almost everything. The city I live in is only hours away from Rochester MN, it has a Big 10 university that has a medical college (research and teaching) that wants to be ranked number one in U.S. News and World Reports list of best in every department known to man. They are arrogant and condescending so I moved on to the #2 rated clinic where people have names not numbers. After drugs etc. didn't work I requested the pump and it was eagerly given to me. No tests or trials prior to the implant which was an OP procedure. When I got home I knew something was wrong ultimately finding myself in ICU (you've read the story). I was a willing participant in this venture so I am partially to blame and in all fairness the surgeon who put the pump in visited me in the ICU twice, reassuring me that it was the drug that caused me to collapse and code. I believe he was truly contrite. Because of his honesty I have more respect for him than I could ever have for those at the #1 place. My stint in rehab was horrific at best and it was during COVID which made matters even more ugly...the local news media regularly aired PSA's saying, essentially, to call 911 if you were in distress. I did, numerous times, but the local EMT's labeled me a "drug seeker" and I was treated accordingly. When the pump finally emptied I was able to start low dose naltrexone (off label for pain but normally used for those addicted to opiates). I ended up going back to the #1 place looking for holistic treatment only to get a PCP who decided I "didn't qualify" for rehab and tried to send me to a nursing home, where you die. Well, I am stubborn, determined, pig-headed, and brilliant, did my own research, said "no" to the **** who tried to kill me, found a great PT, did my own rehab, and now, while I will never run a marathon, am up, thriving and living with tolerable pain. The **** at #1 essentially tried to kill me but I won. Being "retired" and over 50 I am unemployable but determined to return to life on my own terms. I have been through hell and back over and over again but these experiences only make me more determined to carry on for at least 20+ years. I wear a medical bracelet that says "no opiates" and believe that hate, if properly channeled, can be cathartic, that a person's mindset will conquer when the **** want to kill you. Because of my self education I scare the living daylights out of most providers and they actually listen. I have found my own set of champions who have earned my respect because they have learned to listen to me, yet some are still in the learning stage. I am an excellent educator. Again, thank you.
@butchered I’m am very
glad to hear you found your own ways to deal with the pain. Kudos to you! But! After reading your story, this sounds more and more like an actual medical malpractic case. I have NEVER heard of any patient just asking to get the pump and next you’re in surgery. That is absolutely insane and completely opposite of how it is supposed to work. Firstly, have NEVER heard of anyone getting a pump without a trial first. It’s the same with spinal cord stimulators, always a proper trial first. Secondly in most cases the pump is an absolute last resort treatment when every other treatment has failed. I have never heard of any patient just having it implanted and turned on like that right away. Normally you heal for a while before it is even turned on, also it would be on the absolute smallest dose/drip possible..a tenth of a water droplet is all you would get of medicine the first few months..so you must have met some really bad doctors and ifI were you I would sue their arses. Importantly, I am glad you are ok and doing better today. Good on you!