@cheryllynn1003ky
I think it is crucial to be getting treatment from a board certified movement disorder specialist, not a general neuro doc or PCP. In my experience I am having to try out various drugs, to see what works for me. No major successes so far, so I am very familiar with the changes day to day, never knowing what to expect day to day or hour to hour.

There are also new drugs coming out frequently, and your doc has to know about them and be willing o go through the approval with insurance.

Exercise is very important. before I was diagnosed I did not understand what was going on with me, and spent literally years on my back all day, in a recliner etc., because I was so tired. It was scary to get the diagnosis of PD, but at least I know what I am dealing with.

I have also learned I have to fight against the fatigue, make myself move and that helps me feel better, on many days. A specialist doc could get you into parkinsons specific physical therapy, I hope it is available in your area.

I found a youtube channel "power for parkinsons" with many exercises I can follow, including exercises in sitting position. I slow down the videos when I can't keep up, or am learning a new routine.

good luck on this journey!!

@cheryllynn1003ky

I am sorry to hear that your PD symptoms are so troublesome. As @southwest said in her post, it is important to consult with a movement disorder specialist.

Have you asked about a referral for a second opinion?