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Profile picture for southwest @southwest

Where I am coming from is something I read somewhere that in the medical system as we know it, 5-7 years is a typical length of time to get a diagnosis of a complex or lesser known condition.

I googled and found there are only 700 board certified movement disorder neurologists in the USA.

Can that be true? I have read frequently in forums like this one that people are diagnosed and treated for PD by providers who are not specialists. You really need a specialist for almost any ongoing or chronic illness; generalists (like a general neurologist) or a primary care doc simply don't know enough. So there must be a lot of people who are not properly diagnosed, or who receive inadequate treatment.

Maybe it was in these forums I recall someone telling their story, they were diagnosed with PD by a primary care, who was averse to ever sending patients on to specialists, and tried to treat most everything themselves. So that patient did not get what he/she needed. That solo approach just leaves patients with inadequate or wrong treatment in my opinion.

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@southwest
I am in Canada and I truly do not understand the many comments here about how long it took to get a diagnosis. It seems it is primarily Americans saying it took several years and a DAT scan. I went to my GP about my hand tremor, he sent me to a neurologist who I saw 6 weeks later. In 15 minutes, after watching me walk and checking my hand movements / strength he concluded I had PD and put me on levodopa Levodopa / carbidopa. It was all very straightforward.