← Return to Severe chronic pain and Intrathecal pain pump
DiscussionSevere chronic pain and Intrathecal pain pump
Chronic Pain | Last Active: Mar 24 9:25am | Replies (60)Comment receiving replies
Replies to "@butchered I’m so sorry this happened to you. So awful! What I don’t understand is how..."
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@alexandercrps Thank you for your reply. The modern medical system is broken and many doctors are simply stupid. Prior to the pump I had had ablations, injections, patches, plus pills. I think the adverse reaction came as a result of the oh so many attempts to drug me without considering the repercussions. For me it was probably a form of sensory overload. that triggered my severe sensitivities. I am sensitive to almost everything. The city I live in is only hours away from Rochester MN, it has a Big 10 university that has a medical college (research and teaching) that wants to be ranked number one in U.S. News and World Reports list of best in every department known to man. They are arrogant and condescending so I moved on to the #2 rated clinic where people have names not numbers. After drugs etc. didn't work I requested the pump and it was eagerly given to me. No tests or trials prior to the implant which was an OP procedure. When I got home I knew something was wrong ultimately finding myself in ICU (you've read the story). I was a willing participant in this venture so I am partially to blame and in all fairness the surgeon who put the pump in visited me in the ICU twice, reassuring me that it was the drug that caused me to collapse and code. I believe he was truly contrite. Because of his honesty I have more respect for him than I could ever have for those at the #1 place. My stint in rehab was horrific at best and it was during COVID which made matters even more ugly...the local news media regularly aired PSA's saying, essentially, to call 911 if you were in distress. I did, numerous times, but the local EMT's labeled me a "drug seeker" and I was treated accordingly. When the pump finally emptied I was able to start low dose naltrexone (off label for pain but normally used for those addicted to opiates). I ended up going back to the #1 place looking for holistic treatment only to get a PCP who decided I "didn't qualify" for rehab and tried to send me to a nursing home, where you die. Well, I am stubborn, determined, pig-headed, and brilliant, did my own research, said "no" to the **** who tried to kill me, found a great PT, did my own rehab, and now, while I will never run a marathon, am up, thriving and living with tolerable pain. The **** at #1 essentially tried to kill me but I won. Being "retired" and over 50 I am unemployable but determined to return to life on my own terms. I have been through hell and back over and over again but these experiences only make me more determined to carry on for at least 20+ years. I wear a medical bracelet that says "no opiates" and believe that hate, if properly channeled, can be cathartic, that a person's mindset will conquer when the **** want to kill you. Because of my self education I scare the living daylights out of most providers and they actually listen. I have found my own set of champions who have earned my respect because they have learned to listen to me, yet some are still in the learning stage. I am an excellent educator. Again, thank you.