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MDS-CMML-1: Anyone dealing with pruritus (itching)?
Blood Cancers & Disorders | Last Active: Mar 17 8:42am | Replies (56)Comment receiving replies
2 weeks ago diagnosed with CMML 1 with Myelofibrosis 3+/3, after my 3rd Bone Marrow Aspiration in January.
I will see the Stem Cell Transplant team next week to begin the process for Stem Cell Transplant.
The only thing that helps me at all is ICE !!! Often meaning most of my legs and arms are covered in icepacks and when I run out of cold ones, ziplock bags full of ice cubes. I don't go anywhere without ziplocks-just in case.
I pray treatment will get rid of this awful severe Itching I have had since October 2023. Almost every day, often twice a day lasts from just 2 or 3 hours to 8 or more hours. Wakes me up from sleep.
Its exhausting and often miserable. I have tried every applicable specialist, medications, creams, elimination diets...many, many tests. Beyond Ice, nothing else has helped.
I wish you all the best.
Replies to "2 weeks ago diagnosed with CMML 1 with Myelofibrosis 3+/3, after my 3rd Bone Marrow Aspiration..."
@carolgk Oh gosh, Carol, my heart goes out to you with the relentless itching! @rogelling had some great suggestions in their reply for you. I know I had severe itching as well before being diagnosied with another form of leukemia. It was horrible. My family doctor never picked up on that often being a symptom of blood cancers.
You mentioned an upcoming stem cell transplant. I’d be happy to ‘connect’ you with other members who have undergone this procedure. Will this be an ASCT (autologous stem cell transplant) using your own cells or will this be with donor cells?
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@carolgk Ask your doctor to try an SSRI, like Zoloft, Cymbalta, Lexapro. For some reason serotonin antagonists seem to stop the itch.