I’ve had it for approximately 3+ years. Had a flare up low hemoglobin (6) 4 infusions of Ribitoux (?) and then things changed for the good. Monthly blood tests went to every three months. My first 2 years I had (2) MRIs checking on lymph node size, except for my flare up, things are looking good at this point in time. My Doctor says I’m doing well BUT she also says it can come back in a not good way. That’s why the word chronic (CLL) is used. So waiting for the next blood test is rather worrisome but all I can do is just deal with it. Having a positive attitude is good for me. No loss of weight, good appetite, not tired but I do have very slight night sweats that my Doctor is not worried about at this point in time.

Anybody has muscle pain after taking Brukinsa?

@pinkiedo1, I add my belated welcome. It sounds like you are experiencing fatigue or low energy with your diagnosis of chronic lymphocytic leukemia (CLL). Do you have other symptoms? Is treatment being recommended for you?