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bellaskye25 avatar

Feeling cheated

Caregivers: Dementia | Last Active: Mar 11 9:25am | Replies (59)

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Profile picture for kjc48 @kjc48

I think you already have the answer by reaching out, as we as caregivers, are only as good as the care we give ourselves. I know as time goes on, my level of care will step up, although I can't imagine doing any more than I'm already doing. The stress and time involved in caregiving is unbelievable, and what I realize, is depending upon where my husband is in his progression, I will need help and I will have to get it. Getting help in helping him, I do believe, helps us as caregivers, and gives us a chance to not get drawn into the deep depths of depression everyday. That coupled with the MCI - alzheimers and/or dementia we're dealing with, is too much and too costly to our own health. Everyone's financial situation is different; I don't even know at what point you get home health care, and how that works. I know from watching a neighbor whose wife had dementia, he was in denial. Horrible to watch because she needed a much higher level of care than he was capable of giving her. A realization for me, if that ever happened to my spouse, I would provide the level of care he needed, until I couldn't do it alone.

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Replies to "I think you already have the answer by reaching out, as we as caregivers, are only..."

@kjc48 Well said. I recently found that there is a daycare for seniors 7 miles for us. They have different programs offered 2 days a week open from 8am to 5pm for $1195 month. She said it runs about $15 an hour. Whereas day care to your home is $40 hour. I did call to get info and said we might stop by one day. I honestly don’t know if at this point my husband would be happy with that he just loves being with me and like you at what stage do you consider this? I would tend to look for some daycare in my home? One day at a time, I certainly would t take him if he didn’t like it?

@kjc48
Hi, I haven't done this yet myself, but perhaps you could look up the local ADRC in your area, every State has one, and they can help connect you with caregiving services.
All the best. 🌺
(Aging and Disability Resource Connection)