← Return to HCM-ers: Introduce yourself or just say hi

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Hi, I'm Lynne and I'm a 56 year old woman diagnosed with HCM less than a week ago. Currently sat in a regional cardiac hospital awaiting implant of my ICD and a bit terrified about life after this major change.

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Replies to "Hi, I'm Lynne and I'm a 56 year old woman diagnosed with HCM less than a..."

@gingersnap69 , welcome! What a cute user name 🙂
You have come to the right place to share your thoughts and fears about not only just being diagnosed, but also waiting for an ICD.
I don't blame you for being terrified! I would be too.
HCM/HOCM (the unpleasant obstructive form of HCM) are life changing conditions.
There are many members here who have had to get ICDs implanted and are thriving, but still, this is you, and all this is new.
You must feel overwhelmed.
This sounds like it came as a surprise, but now that you know, looking back, are you able to put some pieces together? Symptoms that you felt, but didn't make sense?
Are you otherwise healthy and active?

@gingersnap69 I am joining Jim and Debra in welcoming you, Lynne, to the HCM discussion group! I was about your age when HCM was discovered - heart murmur heard for the first time. My dad quite certainly had it and I am guessing his mom did, too. To receive an ICD, you may have been experiencing irregular heart rhythms and/or other symptoms. I have a cardiologist well versed in HCM, many people go to a COE (Center of Excellence) and I have an electrophysiologist who monitors Buddy, my ICD. Please never forget that all of us have been in your shoes at the first step of "diagnosed with HCM" and here we are telling our tales. We cannot answer specific medical questions or give medical advice, but we can point you to information and share experiences about our big hearts. May I suggest reading about both HCM and ICD on the Mayo Clinic website to start finding out as much as you can? (I'd copy the links but I am not at home with my computer mouse.) Please prepare lists of questions for your health providers. Has your care team recommended medications? Again, welcome!