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Disappointing update on Tymlos
Osteoporosis & Bone Health | Last Active: Mar 25 7:51am | Replies (52)Comment receiving replies
Just a concern, have you seen a good endocrinologist who has checked for any diseases or conditions that might cause osteoporosis?
This includes: endocrine disorders (hyperthyroidism, diabetes, Cushing's), inflammatory diseases (rheumatoid arthritis, IBD), and malabsorption issues (celiac disease). Other key drivers include chronic kidney or liver disease, cancer, and malnutrition/eating disorders, etc. etc.
Seems like over and over again, when posters are unable to make gains on resulting treatments it is frequently because there is an underlying disease that needs to be treated.
Then when that disease is treated the osteoporosis which was just a side effect of the disease becomes less or a non issue. Usually this is good news for most people.
Replies to "Just a concern, have you seen a good endocrinologist who has checked for any diseases or..."
Thank you for your suggestion. I do see an endocrinologist and, of course, various other physicians on a regular basis.
Through tests, I know my thyroid, glucose level, and kidney and liver function are normal. Having a history of IBS, which mercifully seems to have cured itself nearly thirty years, I am quite sure that if I had IBD I’d know it.
As for cancer, I believe it’s breast and gynecological cancers that most affect the efficacy of osteoporosis treatments. I still get mammograms yearly and , having had a hysterectomy 25/years ago (which probably accelerated my developing osteoporosis), I am a no risk of gynecological cancers.
I think I was just unlucky. I’m seeing my endocrinologist next week to plan next steps, and we’ll see what she has to say.
Thank you again for your reply.
@kathleen1314
You are on the right track about underlying disorders. I am convinced my osteoporosis is the result of my chronic pancreatitis with considerable malabsorption. That was diagnosed nearly three years ago and it was so advanced that it was clear the CP had been a factor for quite some time. I take enzymes for that condition. The osteoporosis was just diagnosed this past summer and it too is quite advanced. So I personally am going the whole 9 yards with supplements, exercise, and Tymlos and my bone formation blood markers have already showed significant improvement. I’m counting on Tymlos to do its job and I’m doing everything else to support the medication. I don’t think it’s just one thing that would suffice for most of us. Many of us found out belatedly what we should have been doing over the years to prevent our bone loss. Never too late.
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@kathleen1314 this is spot on. Endo and/or rheumatologist can help on determining underlying causes.