Head pressure is ruining my life

Posted by amandanap1 @amandanap1, Dec 1, 2023

Hello, im hoping that maybe someone can shed some light on this or offer advice if you have experienced the same thing as me.

For almost a year I have been dealing with unrelenting, severe head pressure. Not headaches, though I do get those sometimes. The head pressure is 24/7 and it lasts for months at a time, I get a week off, then it comes back even worse than before.

My symptoms:
head pressure
lightheadedness
vision disturbances (blurry vision, darkness around the edge of vision)
migraines
It feels as if my head is being squeezed and going to explode. It is extremely difficult to do daily activities, I cant concentrate, its taking my life from me. I have had an MRI, numerous CT scans and a lumbar puncture, all clear. If anyone has gone through something similiar and have found something that helps, I would love to hear it.

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Rachel, Volunteer Mentor | @rwinney | Feb 1 9:49am

In reply to @charl215 "@rwinney hi sorry know this is old did you find anything that helped?" + (show)

Hello @charl215. No worries about the post being old. Yes, for me, learning not to fuel the fire was a helpful first step. In other words don't give attention to symptoms AKA no pain behaviors. Pain behaviors are anything you do say or think that remind you of pain. Don't access the network. Stress management, cognitive behavioral therapy, physical exercise and learning how to properly breathe with diaphragmatic breathing we're all and still are important tools in my management. I realized that less was more in the medicine world and through Lifestyle Changes in forming new habits and the way I viewed pain helped reduce symptoms and gave me more power and tools to learn how to manage. Another important piece is positive distraction. Humor, fun... things that give your brain a vacation because pain is tough and you got to pull out all the stops for it. Hope this helps! Please don't hesitate to let me know if you have questions. Stay hopeful. 😊

Rachel, Volunteer Mentor | @rwinney | Feb 1 10:34am

In reply to @charl215 "@rwinney hi sorry know this is old did you find anything that helped?" + (show)

@charl215 Also, here's info on progressive muscle relaxation. Knowing how to release tension can be super helpful, especially for migraine.
https://www.webmd.com/sleep-disorders/muscle-relaxation-for-stress-insomnia
Have you tried any types of relaxation methods?

charl215 | @charl215 | Feb 17 2:05pm

Did this go? Did they ever find out ehat it was?

charl215 | @charl215 | Feb 17 2:06pm

In reply to @rwinney "@charl215 Also, here's info on progressive muscle relaxation. Knowing how to release tension can be super..." + (show)

@rwinney thank you very much. I have tried it all 🙁 it just doesnt go. I joined yoga and pilates too. Done acupuncture. Physio. Its their constant.

Rachel, Volunteer Mentor | @rwinney | Feb 17 6:35pm

In reply to @charl215 "@rwinney thank you very much. I have tried it all :( it just doesnt go. I..." + (show)

@charl215 you say it's been about 5 months, right? Are you working with a neurologist yet?

dornapalmer | @dornapalmer | Feb 17 7:04pm

In reply to @cl24 "Omg...I sometimes feel like I'm the only one who suffers like this. I've had migraines for..." + (show)

@cl24 I am experiencing the same. I am hoping for a cure for all of us one day. Try to remain as positive as possible even though it’s hard.🤗🙏

charl215 | @charl215 | Feb 18 3:28am

In reply to @rwinney "@charl215 you say it's been about 5 months, right? Are you working with a neurologist yet?" + (show)

@rwinney yes neurologist and ent surgeon and physiotherapist and sports therapist. Neurologist just prescribes me medication but it doesnt do anything been on lots.

tamjojoadar | @tamjojoadar | Feb 18 4:38am

In reply to @charl215 "Hi I know this is old sorry but did you ever find out what it was...." + (show)

@charl215
I have been thru many many CT Neuroligist. No one can figure me out. Gabipintin took the pressure to a lessor pressure. So NO they did not find anything and I am on month 9 still trying to figure this out. I had to take up smoking Canibis it takes my mind of the pressure I got off all the meds the doctors subscribed to me and just smoke it is relaxing and so far the best I can do. please let me know if you figured something out.

charl215 | @charl215 | Feb 18 6:21am

In reply to @tamjojoadar "@charl215 I have been thru many many CT Neuroligist. No one can figure me out. Gabipintin..." + (show)

@tamjojoadar oh gosh really bless ya. Sorry to hear that im in the same boat another mri scan next week. Will do ill take a note of it and let you know if get anything else. Yes they was going to put me on that and have gave me noritrpyline instead. Ive been on amitriptyline but that made me dizzy. Honestly its constant.

suszy39 | @suszy39 | Feb 18 8:35pm

In reply to @rwinney "Hello @charl215. No worries about the post being old. Yes, for me, learning not to fuel..." + (show)

@rwinney I would suggest Clincial Massage Therapy. once a month I go, the best help, relax
she works on my head, shoulders.. Best to you. I suffer from ON very painful, I agree with our attitude can change help or hurt us. I have made a practice of not telling anyone expect my husband I am feeling bad, I know it will get getter, I do take nerve block shorts, do
exercise daily for neck and head. try and relax, it doesn't come easy.
Thinking about you a fellow sufferer. From Northern Ca.