@judimahoney thanks for sharing how you're managing stress and anxiety that comes with caretaking for dementia.

I'm in a perplexed position because I'm the only child and caretaker for my mom, along with her significant other of 31 years. He and I have an okay relationship and he will answer any questions I ask however he's not much of a communicator. Their relationship is a non-conventional, unique one and now that LBD is in the mix, I worry about him. He has sent me links of online YouTube videos from doctors so I know he's learning about her disease but isn't really the type of guy to reach out for any help, and honestly he can be oblivious to things at times. It's hard to watch from my perspective -he's got the toughest job of all living there because she's always angry with him due to infidelities and women and children being in the house. All delusions and hallucinations of course but it comes with agitation. I do want to be respectful of him and what he's enduring daily because it's a lot and I don't really know how to help other than daily phone calls checking in and texting to keep tabs on situations and showing up which I do 3 to 5 times a week.

They're both resistant to help but I have applied through Medicaid in our state for the nursing home transition and diversion waiver program - support that comes to the home. Neither of them believe in these types of support so it'll be baby steps, but I feel it's my due diligence to have a plan in place as I know she's not going to get better and things will get harder. Just trying to stay ahead of the curve, respectfully. It's a program that can be in place even if we don't utilize many resources just yet.

Does anyone in this thread who is a spouse or companion have any recommendations or suggestions for a child? What types of support would you want from your child that would matter most?