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@joanallione
What mg are you on? My LVOT gradient is 55 and my cardiologist wants to increase me from 10 mg to 15 mg. Im a little scared of the increase because if the mg is too high it can cause loss of life

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Replies to "@joanallione What mg are you on? My LVOT gradient is 55 and my cardiologist wants to..."

@tvickery i’m taking 7.5 at 5 at night and 2 1/2 in the morning…yes death is a significant side effect 😟 but in my discussions with my doctor, he said that they have to put those black box warnings because of the way they did the studies for the drug. They didn’t do it in a certain way that the FDA prefers, i can’t remember the difference now, but the point is that they did do all the testing in another way and as far as I know, they haven’t had any deaths from the use of CAMZYOS. Personally, I would be happy with 55 but it really depends on how you feel like mine is high gradient. It’s really high, but I feel fine. I can climb up pills. I don’t feel limited at all by my HOCM. You might talk to your doctor about adding 2 1/2 instead of another five you can do that and also spreading it out not taking it all at once. I find that better like some in the night usually the larger dose because it can make you drowsy and then the smaller amount in the morning that’s just what I’ve worked out with my doctor.