Is loss of balance your primary complaint with neuropathy?
Is the loss of balance your primary complaint with PN? And, fear of falling?
I have no pain in my feet. I do have numbness of primarily my toes and forefoot, and to a lesser degree of the whole foot and ankles. My feet have weird sensations of walking on mashed potatoes and sliding sideways; when I haven’t actually moved at all. Scary. I claw at the air thinking I am falling. My toes are curled and they feel stuck together. Carpeting really adds to the sliding sensation.
I am a 73y old woman and, up until the last year, I volunteered with an animal rescue and walked on uneven cement dog runs, cleaning enclosures and feeding and walking dogs. Eight years 2-3 hours, several times a week. Retired nurse and never had a sit down job. Could walk for hours in DC, just exploring.
Now I have to hold onto something when walking or I feel like I am falling. Not going out as often. Sliding sensation is mostly at home on LVP flooring and carpeting on stairs. I wear slipper socks at home. Referred to a neurologist and saw him after a 3 month wait. He has great reviews. At first he was encouraging, sure that I had an inherited condition, which I was sure I did not. 2nd visit, after lab work, he attributed it to SFN related to metabolic syndrome. He had just attended a conference. He then added ALA to the B12 prescribed by my primary. He didn’t even know if ALA was over the counter, so he sent an Rx to my pharmacy. Said he would see me in a year. I felt dismissed. Never even looked at my feet. I did research, and now take R-ALA 300 mg twice a day and B12 2000 mcg once a day. Not sure if I have been taking the supplements long enough to notice a difference. Research led me to toe spacers, toe exercises, Hoka Clifton shoes, floor based foot massager, open toe compression foot socks, and Bengay at night; Bengay for discomfort but not pain when going to bed. Actually, I bought the Hoka shoes before the numbness started, because my balance felt off. They are the only shoe I can wear now. Starting today, I am experimenting with a Zero Sunrise shoes as opposed to slipper socks in the house, to increase feeling in my feet. I have a purchased a Bob and Brad massage gun, but have not opened the box yet.
I am thinking of asking for a referral to a podiatrist to actually have my feet seen and suggestions for improving balance.
I welcome your experience and suggestions for what has worked for you.
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I recommend you get a "MED MASSAGER" top of the line foot massager! I bought one after going to a Nerve clinic for Neuropathy and that is what they have and use for all patients!!! You can buy one on Amazon. I use it before I use my LASER equipment as it circulates the blood and that is good for the treatments!!!
@njed I had stick on shower bars and they are DANGERIOUS never ever trust them. I installed KOLLER hand bars bolted to the shower walls now!!!
@marina88 Don't install the stick on ones you will fall eventually!!!!! Have hand bars that fasten to the walls with hardware!!!!
@rollo8 The best shoes I found are "FITVILLE" they have an extra wide toe box, slip on have shoe lasses, but velcro fasteners!! They are wonderful!!! Get them on AMAZON!
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3 Reactions@bouf1948 15 years. That is a long time. What caused it? How old are you? I’m 83.
@doctordeuce Fitville shoes changed my husbands life! He's always had wide feet and shoes never fit properly. Feet always painful. Not anymore. Plus, they have step in shoes on sale for $39! He bought two pair!
Thank you so much for your reply! If you don’t mind me asking, you said it helps with numbness. I'm wondering by what percentage it might help. That's my main symptom that is worsening.
@sewsforfun
You need a doctor's prescription/order and hope that they can convince your insurance to cover it.
Yes, I understand. Thanks!
@phyllisq
Hi, I began to feel a bit unsure about my foot placement on the pedals. I voluntarily decided to stop driving. I was only 58 yrs old. It was a bit devastating but I could not fathom risking someone else's life.
I tried everything I could(short of all the scams out there) to try to regain the numbness in my feet but reality has set in. It is not going to get any better, at least not in the near future.
A friend recommended I try care.com to find a person that would be interested in driving me to run errands, go to doctor appointments, shopping, etc...
It worked out really well. I pay her 25/hr and she helps me as needed. Way cheaper and easier than taking a taxi or Uber.
I am 62 now and I am looking into adaptive driving devices and training.
I wish you all the best and wish you the strenght to make the right decision, if the time should come, to stop driving.