@eloise999
Thank you! Hope you’re doing well too.. I do have a cardiologist because I have a heart lesion birth defect that I just found out about 4 years ago before my hysterectomy 🫣. I actually I had to have an IV iron infusion for my anemia last week and I had an anaphylactic shock and that’s the first time I’ve ever had that! They even did a prophylactic before the infusion with dexamethasone and Pepcid and I still had an allergic reaction! A severe one..I thought I was gonna die! I am allergic to bleach, latex, flu shot Levaquin and doxycycline and also mosquito ,ant and bee stings… after the infusion was done I stood up and had severe bone pain and all of a sudden I’ve got Welps behind my arms and legs and then I couldn’t breathe and I passed out and ended up in the ER ..so now I’m going to be seeing an immunologist on Thursday to find out what caused it because it could happen again or there was already something underlying that caused it like MCAS or something else .I looked back at my bm biopsy from 2024 and I definitely have the kit gene mutation , the ATM mutation is also linked to MCAS. I’ve been doing my research because of misdiagnosis and doctors not really listening to your symptoms. I feel like I will get more answers once they do the Allergy &immunology work up bc something‘s getting missed in my blood work. My white blood count shot up to 15 and now I’m having nosebleed’s on the left side of my nose since the anaphylactic shock😞