← Return to Pleomorphic lung cancer with met exon 14 deletion and HLH from ICI

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I also had a diagnosis of stage 1B pleomorphic lung cancer. These pleomorphic cells seem pretty aggressive. Beyond that, my experience has been different than yours and though miserable, it has not been as intensely scary as yours. But I'll share anyway.

I had a left lower lobectomy last May and the advice from my surgeon, oncologist and from a second-opinion (Dana Farber in Boston) was that I should not have further treatment. However, it turned out that it spread to lymph nodes near my left lung and I have recently finished six weeks of chemo/radiation (actually it was only four weeks of chemo because my blood counts had dropped too low to continue). Unfortunately, though it's not yet clear whether this did anything for the lymph nodes, my cancer has now spread to a spot on my right lung and a spot in my brain. I will find out this week what the plan is.

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@elyser
Preying for an effective plan. Yes, this type of cancer seems particularly nasty.