@oregongirl Sorry to butt into your conversation, but your comment hit's home here as well. Our local insurance based medical community just wants to dispense drugs to treat symptoms. They are discouraged to do research on behalf of their patients, and we are left chronically ill unless we take matters into our own hands. There are other disciplines, but I just wanted to mention the one I found and trust. I have to pay out of pocket for her services, but she is very reasonable because she cares and is in it to help people recover. That is a MD who has completed the Functional Diagnostic Nutrition accreditation. There are other service providers with a FDN title, but it's better having an actual MD who can prescribe medicines when necessary. This doctor knows the human system and is data driven by unique tests that she knows how to read and correlate with your past medical test, and all tests that she/he may ask for. And, this wasn't a 20 minute appointment. They will spend an hour or how ever how long they need to get the information to or from you. I tell you in the two hour data dump at the end, with all the issues she found, and explaining how they all work together, and the game plan, that has to be fluid, because they do work together, etc., etc.. I mean, I'm a very complicated case. I messed myself up. I've got 6 current doctors and my PCP actually puts her hands in the air and says, "This is beyond my expertise", but in the last two years I've been with this FDN doctor I've grown stamina, and my day to day pain level has less jumps into the 8s or 9s, and my Fog has lifted substantially. The triggers are still there, and when they happen, nothing matters, no drug is going to stop the pain, but I do believe after I come out of that hell, I recover faster. I can't put a price tag on that. It may take me 3 or 5 more years to work myself out of this, but I think there is a path out of this. Maybe I've been lucky, but that's who I would look for if I needed a doctor and was willing to go outside your network.