1. < Polymyalgia Rheumatica (PMR)
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Is this common?

Posted by betsyhase @betsyhase, Feb 11 4:19pm

I just started on Prednisone for PMR on 2/6/26. On 2/8 I woke up in horrible pain, brain fog and unable to walk without assistance. After taking 12mg. of Prednisone it took 6 hours before the fog started lifting. I researched this website and saw that some split their dosage taking a small amount after dinner. This has helped greatly but I am still compromised but better.
Weakness, brain fog etc.
Any comments, or other suggestions would be greatly appreciated!

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betsyhase | @betsyhase | Feb 14 12:41pm
In reply to @stonewheel "@betsyhase my diet was great before PMR. I didn’t need to modify or change it. This:..." + (show)
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@betsyhase my diet was great before PMR. I didn’t need to modify or change it.
This:
Vegan except raw fish (sushi) salmon and tuna for omega-3, lots of vegetables and fruit smoothies with anti-inflammatories like blueberries, strawberries, banana, kiwi, apple, aloe vera juice. Old fashioned rolled oats in the smoothie or cooked and add those fruits to break the breakfast monotony.
No dairy except cottage cheese, Parmesan and plain Greek yogurt.
salads
Moroccan ev olive oil, olive oil butter, only sour dough bread.
Local raw honey and 2 yard eggs every day.
Walnuts, pecans, and peanut butter.
Plant based burgers or chicken occasionally.
No sodas. No sugar. No sweets or candy.
Oat milk, coconut water, fruit juices, black coffee, and water ( 3 quarts a day, more in the summer.)
I know I rambled but that’s my diet.

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@stonewheel
Thank you for the very detailed response. Yes, I have been watching my food intake but was slacking lately. I assume doing an anti-inflammatory diet would be good. Most of the items are not a problem and I do mostly organic, clean meats but I do use alittle dairy. Greek yogurt and sour cream added to recipes.
Hopefully these small amounts don't throw off my progress. I have to admit while feeling so awful over the past few months, sugar has snuck into my diet alittle more so I know I need to get back on track with that too.

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stonewheel | @stonewheel | Feb 14 3:01pm
In reply to @betsyhase "@stonewheel Thank you for the very detailed response. Yes, I have been watching my food intake..." + (show)
Profile picture for betsyhase @betsyhase

@stonewheel
Thank you for the very detailed response. Yes, I have been watching my food intake but was slacking lately. I assume doing an anti-inflammatory diet would be good. Most of the items are not a problem and I do mostly organic, clean meats but I do use alittle dairy. Greek yogurt and sour cream added to recipes.
Hopefully these small amounts don't throw off my progress. I have to admit while feeling so awful over the past few months, sugar has snuck into my diet alittle more so I know I need to get back on track with that too.

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@betsyhase Prednisine really makes me hungry and it is a struggle for me to refrain from eating constantly. I have a love hate relationship with prednisone.

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jeff97 | @jeff97 | Feb 14 3:08pm
In reply to @stonewheel "@betsyhase Prednisine really makes me hungry and it is a struggle for me to refrain from..." + (show)
Profile picture for stonewheel @stonewheel

@betsyhase Prednisine really makes me hungry and it is a struggle for me to refrain from eating constantly. I have a love hate relationship with prednisone.

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@stonewheel
It slowed down my metabolism and made it very difficult to know what and how much to eat. When I ate, I would think about the portion size before I was sick, and then I would cut back a little on that. It was great to see my regular metabolism return about a month after I finished prednisone.

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betsyhase | @betsyhase | Feb 14 5:49pm
In reply to @stonewheel "@betsyhase Prednisine really makes me hungry and it is a struggle for me to refrain from..." + (show)
Profile picture for stonewheel @stonewheel

@betsyhase Prednisine really makes me hungry and it is a struggle for me to refrain from eating constantly. I have a love hate relationship with prednisone.

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@stonewheel
Yes Prednisone is a magical drug that works quick but terrible side effects if used too long.
Balancing it is key.

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jabrown0407 | @jabrown0407 | Feb 15 8:11am
In reply to @betsyhase "@stonewheel This was a very helpful response. I have been adjusting my Prednisone and now seem..." + (show)
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@stonewheel
This was a very helpful response. I have been adjusting my Prednisone and now seem ok on 10 mg in AM and 5 mg after dinner. Pain is now minimal and my brain fog gone. My MD is on board. Rheumatologist not available for 4-6 months but my primary is working with me and is receptive to my feedback of adjustments.
I guess I need to be doing a more careful diet of anti-inflammatory. I could be alittle better in that department.
Did you find your diet made a big difference?
TIA/ Betsy

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@betsyhase I eliminated refined sugar and it helped bunches. It took about a month to get past the craving for sugar. Thee years later I don't even want sugar any longer. Lipid panel showed amazing results. Good luck.

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