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Myqorzo: has anyone tried this new alternative to Camzyos?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 days ago | Replies (29)Comment receiving replies
Thanks for your question. I am wondering the same thing I am on CAMZYOS 7.5 and my gradient is still 100 standing with Valsalva and 70 lying down and so my doctor wants me to try it but I’m hesitant and also I’m afraid about the transition. where you have to wash out the Camzyos for four weeks. . My LVOT is 68%.
Replies to "Thanks for your question. I am wondering the same thing I am on CAMZYOS 7.5 and..."
@joanallione
What mg are you on? My LVOT gradient is 55 and my cardiologist wants to increase me from 10 mg to 15 mg. Im a little scared of the increase because if the mg is too high it can cause loss of life
@joanallione Just reading about your concerns of stopping Camzyos. I have had "moderate" HOCM diagnosed 1988. Started Camzyos 7/22 and about a year later ejection fraction dropped to 49% so Camzyos was 'held' due to protocol. Just wanted you to know that the 4 weeks of 'washout' wasn't frightening or terribly difficult. I was more conscious of how I felt (hypervigilent) but in reality didn't not much increase in shortness of breath until about the end of third week. Was definitely less bothersome than anticipated. I was, however, only on 5 mg at the time and in atrial fibrillation; once restarted (at 2.5 mg) my ejection fraction increased. Everyone is difficult of course, but just wanted to comment that the 4 weeks it was stopped were not terribly difficult.
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@joanallione, I wasn't even aware of a Camzyos washout period. That does sound like it could be quite unpleasant or worse. I'm not preparing to quit Camzyos so long as it keeps working. I'm just trying to keep up with the science. Thanks for sharing your situation and making me aware of the washout period! Good luck.