Am now almost 18m after diagnosis of stage 1b pleomorphic lung cancer with met exon 14 deletion after not being able to finish a 60 mile bike ride as a lifelong athlete, wellness/fitness person. After resection locally had MDA consult and received chemo x4 and then one dose of Tecentriq (the immune checkpoint inhibitor) and eight days later developed a fever and then declining mental status and lab trends and a bone marrow biopsy led to the rare diagnosis of hemophagocytic lymphohistiotosis (HLH) encephalitis. Lost consciousness and my airway and ended up on the vent. After a few days of high dose steroids, Anakinra, and PLEX, I woke up but had a poly neuropathy with left arm and bilateral leg weakness. Months of steroids and inpatient rehab and was able to walk again about five months later and can now do many activities, although I have limited endurance. Last CT without evidence of recurrence but the high risk features of the tumor (including lymphovascular invasion) weigh over me as I could not do the immunotherapy.Has anyone had anything like this?BTW, kudos to Brooke Army Medical Center in San Antonio where I was visiting for making the rare diagnosis and starting the unique treatment plan that saved me and my brain!