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Traveling with PMR

Polymyalgia Rheumatica (PMR) | Last Active: Feb 13 6:02pm | Replies (51)

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Profile picture for chamberlainrebekah5 @chamberlainrebekah5

Does anybody take Rinvoq? Does it work for you? What's is the best treatment? Im newly diagnosed and I am miserable.

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Replies to "Does anybody take Rinvoq? Does it work for you? What's is the best treatment? Im newly..."

@chamberlainrebekah5 Here is a thread that has been active lately - https://connect.mayoclinic.org/discussion/who-is-on-rinvoq-for-gca-vs-actemra/

I have been taking weekly Actemra injections for a year and a half, and that has worked well for me. I've been off of prednisone for 6 months, and I haven't had any symptoms or flares in the past 20 months.

Are you currently taking prednisone? What dose are you on? When were you diagnosed? Are you miserable because of GCA or because of prednisone?

@chamberlainrebekah5

The use of Rinvoq is catching on quickly. I think doctors are very willing to try these newer treatments options for PMR/GCA. It has been well known for many years that long term Prednisone use wasn't a great option for PMR/GCA.
https://www.clinicaltrialvanguard.com/news/abbvies-rinvoq-a-surging-new-option-for-gca-treatment/
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I believe these newer and perhaps "better" treatment options are long overdue. More and more, I think Prednisone is seen as a "short term" bridge to some of these other options. The biggest drawback to the newer options is the cost. Rinvoq will have the advantage because it can be taken orally.