@sharooni Sounds like you are doing everything you can to support your husband in his recovery. This road really is so very different for this type of cancer. For every step forward there are often steps backwards and improvements are often hard to see. I know it’s hard but try to focus on the small wins. I really like your idea of working with your husband to have him do the tube feedings. We found that doing them 4 times a day worked better for my husband since he has some reflux issues. Smaller feedings helped him. We are also finding Omeprazole is helping to reduce swelling in his esophagus which is improving his ability to swallow.

Take care. You are making a difference.