Chronic Back Pain for Years
6 back surgeries (extensive cervical and lumbar fusions) with neurological complications. Left with chronic pain. Accident happened in Nursing career 1992 and worked with first fusions until 1999 (failed fusions). At my age, and as a former nurse educator, I never wanted to had to rely on medication/s for the severe pain. Having thoroughly exhausted exploring sites using non-pharmaceutical methods, using psychological methods, biofeedback, trying to accept my limitations, i.e., I still believe somewhere...out there...is hope. The strong medicine has caused gastroparesis, further complicating my health problems. They are too numerous to write and I will not focus on them. I am looking for "help" and guidance. If I can be of assistance to anyone throughout their trials, (perhaps similar to some of what I have gone through), I will.
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@Gail Your welcome Tramadol 50 works where the Tylenol in it doesn't for some reason the Tramadol isn't as effective for me just plain Tramadol. I just received an email from a Bill at TM test wanting to know if I still wanted to be tested did you before you where? They gave an ABC report about the testing also.Did you receive this information?
@gailb I see the pain specialist/neurologist in August. I will ask him about the Tramadol. Out of desperation I had botox injections from DDS because of TMJ. Not FDA approved for TMJ and set me back $1200. Trigger point injections in several areas as the clinching/grinding had my upper back (scoliosis) in a lot of pain. I have a splint and having it built back up has not helped. All docs around are fearful of prescribing anything stronger than OTC's. Hopefully this fear will pass. I don't have a history of substance abuse. The injections in my jaws has helped some. The whole body is connected!!! No relief from the other injections, but it can take 3 to 10 days to notice any change. Sure hope I did not throw that money a way.
Anyone else have experience with botox injections?
@cognac thanks as I was wondering about the validity of some of these things. Can get sticky with insurance and giving out personal information...dubiuos.
@gailb@grandmar here's a link for the fibromyalgia report from ABC http://www.wcub.com/article/mass General research-fibromyalgia -,vaccine10364683
@Parus hi haven't heard from you ,this is lioness Linda didn't you say you also have fibromyalgia?A website http://www.fibromyalgia.com says TJM also they relate it to fibro,Post above about a test for fibro blood test now which they never had gailb talks about it then I found info that it was on ABC I called and am going to take it.
@lioness
Yes, they called me first and told me they were mailing the blood test kit. Then I called them to find out where I could go to get the blood draw. That's when they said they would come to my house and do it. I didn't know about the ABC story, so I'll look it up. I haven't been diagnosed with fibromyalgia in the past, but my sister has it and I have wondered for years if I do. I didn't want the stigma of it when everyone was questioning whether or not it was a real thing, so I never asked my docs about it. I figured I would just tough it out.
Gailb
Volunteer Mentor
@Gail o.k. Then I,'ll get the blood test Dr.Visual my rheumatologist in Pa.did the trigger points I had 11of 18 but want to confirm it now so thanks Linda
I’ve had Botox injections for neuralgia pain in my head. For me it did not work. But, I know people that it worked for and they swear by it, returning every 3 months for repeat injections.
I have 3 nerve block injections for my pain done every 3 months. Because they work for me I swear by them.
Hi Jen,
I actually looked into the spinal leak and the symptoms are polar opposites.
You are worse standing up or in a sitting position and better when you lay flat.
For me, I am worse when I lay down and better in a sitting position.
But during my research, I did find something else that sounded very similar.
The headache presents similarly.
It is called occipital neuralgia.
I will check both out with my doc.
Funny, once when I was in Hawaii, I needed a prescription for a med (can't remember which). My doc called it in with no trouble.
Possibly the regs have changed.
@lioness yes, I have fibromyalgia