@fritzo
Your biopsy information looks good. They don’t appear to have found any of those aggressive things I mentioned, though a biopsy of the prostate after surgery is more informational. In my case, my PSA was 3+4 before surgery and 4+3 after.
Your comment about Additional drug treatments in the future is actually here already. Eight years ago, my cancer came back after surgery and radiation and I went on ADT for 2 1/2 years and when it failed and I became castrate resistant, I went on Biclutamide For a little over a year and then Zytiga for 2 1/2 years. I stopped taking it and went on Nubeqa Which has kept me undetectable for 27 months. So after 16 years, the drugs that are available today have made a major difference in my survival. There are a number of drugs that are going to be coming out in the next few years that are going to work when what I’m taking now stops working. I was reading about one study where they are turning cancer cells back to normal cells so there are lots of options available in our future. You are just starting and there is a long path ahead of you.
Now that I’ve seen your biopsy and you’ve had multiple 3+4 active surveillance is definitely not in the picture, especially with the .61 decipher.
The decipher score does not decide whether or not you can have nerve sparing surgery. It all depends on where the cancer is located in the prostate. This is something you can ask your doctor about.
After my surgery, I had no incontinence and complete ED. There are a lot of solutions for that today between an implant and injections you can use that can get a very satisfying erection. If you do have incontinence issues, they usually don’t last long and there are multiple solutions.
You definitely want to get genetic testing, talk to your doctor. They can easily do it. It’s covered by insurance.
@jeffmarc
First, thanks so much for that assurance on those test results. I know tests are not absolute proof of my situation, but it's all I got right now. Feel better that I don't have those issues on my plate right now.
Second; Mind blown at your journey with all of the drug treatments. This is NEWS to me. I did not realize that recurrence options went beyond surgery>radiation>gene drug therapy.
So glad that all of these methods have worked for you. I can only imagine the angst as each phase offers hope and then diminishes. You are a warrior in my mind.
Is there value in getting genetic testing before surgery? I'm guessing that genetic drug treatment is a recurrence treatment and not a starting point.