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How long does post concussion head pain and cognitive fatigue last?
Traumatic Brain Injury (TBI) | Last Active: May 3 6:10pm | Replies (58)Comment receiving replies
Just feeling down….has anyone been told that someone couldn’t believe that you are still not recovered yet, by a doctor and coworker in that demeaning tone that makes you feel like it’s your fault?
I have never had such a hard time returning to work everyday with all these symptoms and just functioning everyday. Sometimes it’s all I can do to just survive the severe cognitive impairments and fatigue during the workday, make it home and just cry.
Thanks for listening and letting me vent everyone, I am so much better than before and I know I have a long way to go and I won’t give up but it is definitely hard to hear statements like that and deal with people who have no compassion towards our TBI difficulties and recovering as much as possible. I will never fully recover but I am working so hard to learn all of the tools and tricks to function at the highest level possible!
Have a blessed day
Replies to "Just feeling down….has anyone been told that someone couldn’t believe that you are still not recovered..."
@jenniferctbisurvivor
Yes! A concussion/physical therapist told me that post-concussion syndrome only last 3-4 months at most. A few relatives have asked why I am STILL not recovered, but they don't know any better. The therapist does vestibular therapy and should know better.
It's very frustrating. First, everyone is embarrassed when they don't function right.
It's just very cruel and dehumanizing when people say that (knowing you have a TBI), because you can stand, walk, appear "normal".
Some people say it out of pure surprise, because they don't know what else to say. Kind of like when you address someone who had someone close die and people say they don't want to hear one more "I'm so sorry for your loss".
We have had improvements with Neurofeedback. It's noninvasive. Medical program with leads you clip to your ears and stick to your head. It reads your brain activity (like 230 times per second) and sends it back in. Essentially, until your body corrects itself. Some insurances cover it ($200 per session). I was fortunate a lady offered trials for $50 per session. Then I bought the medical equipment ($10K).
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@jenniferctbisurvivor
I have sometimes felt suicidal beause of this very thing. I am holding on. So tough to deal with. If a person has not exeriened this that person cannot understand.
Dolly