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Memory loss headaches and anxiety no explanation 18 years old
I have terrible memory loss at 18 I struggle to remember past events recent events and conversations this all started after terrible headaches in my forehead nausea and fatigue with aches in bones I went to my doctor ordered a mri they said no abnormalities then I thought it’d get better it didn’t I went to a neurologist and they said that it could be fnd or severe anxiety or depression I told her I didn’t have this before but she saw how desperate I was and she brushed me off then I went to a university hospital and they said that my mri was normal again and I don’t know what’s wrong anymore i seriously have memory loss I don’t remember past or recent events I have agitation anxiety and depression unexplained but they can’t tell me why I’m only 18 and I feel like I’m in a dead end I’m concerned about autoimmune causes but no one will listen to me I was considering John Hopkins in Baltimore since I’m kinda close and go to the er but I’m not sure this all started in November I’ve also have instances where I’ve struggled to speak and I have extreme fatigue and restlessness and muscle spams sometimes any recommendations of what to do this kinda just happened out of nowhere no low vitamin b12 normal thyroid no vitamin issues this has been so hard on me because I have no idea what’s happening it feels like my life has been taken away from me 🙁
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@jasonruiz731
I had both MRI and CT scans and both were normal. I was however still diagnosed with Functional Movement Disorder. I was prescribed 300mg of Gabapentin three times a day and that controls my symptoms. Not sure where I would be without the Gabapentin. It worked wonders for me.
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1 ReactionI would head to John Hopkins! There are so many Large medical centers in the North to choose from. The Research Triangle in NC, NYU Langone, Temple in PA to name a few. Keep at it being your own advocate!
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1 Reaction@jasonruiz731
I’m sorry you are dealing with this. I agree with many of the suggestions posted. When strange things occur suddenly, I’d think of the following possibilities: 1) Could recent vaccinations (COVID, Flu, RSV, etc.) have caused these symptoms; 2) Are you taking medications, supplements, etc., that could be adversely interacting causing these side effects; 3) Tick Borne Diseases can truly “mess” a person up (Sandy’s suggestion). Do you have any rashes that suddenly appeared ( typical for tick borne diseases); 4) Testing also for Chronic Fatigue Syndrome is another consideration; 5) Auto-immune Disorders are difficult to diagnose, but doctors should still look at your entire medical history, immunizations, medications, and also consider your family history. Has anyone else ever experienced these symptoms?
Your PCP needs to be pressured to understand that this is real and that you need referrals. If this doctor is not helping you, then reach out to friends or research online to find better PCP’s.
Unfortunately, ER’s aren’t the best place to start.
Doctors usually start out with blood work that rules out certain diseases and conditions (Definitely explain your insurance position because some tests are very expensive; my neurologist was surprised by a $7,000 charge on one that ruled out Parkinson’s for me).
Scans and MRI’s are next.
Call in any favors from people who could help connect you w/specialists and hospitals.
Wish I could help more. Good luck.
I understand that Johns Hopkins has specialists who just diagnose difficult cases. Maybe something to check in to!
Jason you need to start with your primary care physician or pediatrician or whom ever is providing you medical care. From there you can be referred as necessary to an appropriate provider. Since you’re so young don’t drive yourself nuts drumming up illnesses to hang your hat on from the numerous responses you’ve received.