Fearing risks of Prolia

Posted by slr1 @slr1, Jan 6 8:55pm

I am going to my pcp tomorrow morning to discuss whether to start Prolia or Jubbonti after getting dexa scan results showing my osteoporosis has gotten worse. I took Ralaxifene for the last 2 years and it didn't help. I have researched these 2 drugs and have read a ton of bad side effects from patient reviews and I am really nervous to try! After taking Boniva just one time in the past, I felt like I was ran over by a truck for 3 days and I refused to ever take a biphosphate again. I am thinking about not starting a new drug and exercising more. Any input is much appreciated!

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for mcchesney @kathleen1314

@crystalwater
I found some personal comments by using the search engine on Mayo to search for Prolia injection and dental.

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@kathleen1314
Thanks

Thanks!
I am off to check them out

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I had been taking allendronate for two years with no change in my scores. I had my second shot of Prolia in December and hoping it will be effective. I have severe osteoporosis.
My first cousin was diagnosed with same degree of osteoporosis but refused the drugs. Instead, she practiced
daily Pilates on the Pilates reformer machine and watches her diet. Doing so reversed
(Improved) her scores quite a bit
I’m physically unable to do what she does, but really impressed (as is her doctor) that it works
I think drs believe, and understandably so, that most people will not stick to an exercise routine

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Profile picture for irishnanny3 @irishnanny3

I had been taking allendronate for two years with no change in my scores. I had my second shot of Prolia in December and hoping it will be effective. I have severe osteoporosis.
My first cousin was diagnosed with same degree of osteoporosis but refused the drugs. Instead, she practiced
daily Pilates on the Pilates reformer machine and watches her diet. Doing so reversed
(Improved) her scores quite a bit
I’m physically unable to do what she does, but really impressed (as is her doctor) that it works
I think drs believe, and understandably so, that most people will not stick to an exercise routine

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@irishnanny3

Have you and your doctor discussed anabolic osteoporosis drugs for bone building as well as sequencing of drugs......very important. Are you doing your own research so that you can be a partner in your care?

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Profile picture for crystalwater @crystalwater

@kathleen1314
Thanks

Thanks!
I am off to check them out

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@kathleen1314
I did not find anything pertaining to Prolia and Dental, but it was interesting reading more about Prolia.
I paused my injection when I was in this situation last year, but it seems not to be discussed much anymore.
Thanks again for responding.
Crystalwater

REPLY
Profile picture for crystalwater @crystalwater

@kathleen1314
I did not find anything pertaining to Prolia and Dental, but it was interesting reading more about Prolia.
I paused my injection when I was in this situation last year, but it seems not to be discussed much anymore.
Thanks again for responding.
Crystalwater

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@crystalwater
I did a search on the search engine just in the osteoporosis section.
Here are two conversations, older but that probably does not matter for this discussion.
https://www.inspire.com/groups/bone-health-and-osteoporosis/discussion/prolia-and-dental-work-1/
https://www.inspire.com/groups/bone-health-and-osteoporosis/discussion/prolia-and-dental-implants/

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Profile picture for leslieb52 @leslieb52

@ausiemaggs73 I will ask my doctor about B6 vitamin.
You are tiny. I am small too, about 53 kg.
Xxoo

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@leslieb52 How are you going Leslie? Not sure how to send a private message so hope this gets to you. I had to search through my emails to find a message from you. How's the Prolia going? You were having your first shot last time we spoke on here. love from Australia xx

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Profile picture for ausiemaggs73 @ausiemaggs73

@leslieb52 How are you going Leslie? Not sure how to send a private message so hope this gets to you. I had to search through my emails to find a message from you. How's the Prolia going? You were having your first shot last time we spoke on here. love from Australia xx

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My personal email is labyster@yahoo.com
What’s yours?

Sent from Yahoo Mail for iPad

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Profile picture for leslieb52 @leslieb52

My personal email is labyster@yahoo.com
What’s yours?

Sent from Yahoo Mail for iPad

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@leslieb52 I sent you an email

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