Chronic Back Pain for Years

Sorry to hear a story so similar to mine. While doing an internship in Chemical Dependence at a hospital, I also worked as a nursing assistant. I was making a hospital corner on a bed, sneezed and blew out a disc in my back. Surgery for repair at L5-S1 was the start. That was 1975. Since then there have had 17 back and neck surgeries. My lady says that I have the longest butt crack in the world.

I developed fibromyalgia in the 80's and autonomic peripheral neuropathy in the 00's. I've been in chronic pain for many years. Since the DEA put pressure on the FDA to make it more difficult for us to get opiods, I have had problems getting the one drug, morphine, that works for me. As a former Chemical Dependence counselor and inpatient and outpatient treatment director, I'm very aware of the dangers of misuse of medications. I've never overused any drugs.

If you take meds as prescribed, you won't get into problems. Naturopathic medications have not been effective, for me. The government doesn't tell that the number of suicides has increased among chronic pain suffers who can't get their medications. It's the people who abuse illegal substances that are addicted. Please don't disparage or denigrate your need for such medications. Use as needed.

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Thank you Justin and I gladly will share my story if it can help anyone. It is very lenghty so I will try to keep it as abbreviated as possible but to the point. I can understand some of what physical therapy you "might" have gone through post-op with an ankle fusion (had a total rt knee and lt hip replacement). You are correct...long and hard.
I injured my back as a nurse involving a patient. For 2 years I was misdiagnosed as a "lumbar strain" when actually it was a cervical cord compression at C5 to C7. I did have a slight herniation at L4 and slippage and most pain seemed to come from there. My bowel and bladder were affected, legs were weak and arms. I worked in the NICU as "light-duty" using a special back brace but over 2 years continually symptoms became worse. The head of physical therapy stated my EMG showed more from the cervical or upper thorax than lumbar. I started to pronounced arm weakness, neck pain,and cervical headaches. The physiatrist stated, "I tell the doctors to always check the whole back because often the problem is coming elsewhere and not where the patient's pain is." My doctor "knew" better and thought MS but the MRI was negative.
To shorten the story, I went to the"pioneer of back surgery" in Philadelphia (an orthopedic surgeon I knew) and saw his neurologist. First glance he noticed in my face the abnormal jaw reflex and the change in the curvature of my neck into an "L" shape. I had almost a "total" compression C5-C6 and C6-C7 just about as bad. My doctor stated I should have been dead or a quadriplegic and was amazed I was even walking. I had an anterior fusion 2 years after my initial injury (1994) and then the slippage and herniation L4-L5 worsened (I was working part-time as an instructor at my hospital).
I needed trimming L4 and fusion L5-S1 with hardware posterior in 1995 and kept working. My symptoms improved with some neurological deficits remaining but not that severe. Pain only when walking too much and not taking enough breaks. As time went on, I started have all the original symptoms reoccur.
I had what is called a "failed" fusion. My fusions were unstable and areas above and below were herniating or impinging nerves. The peripheral nerves to arms, legs, bowel and bladder and now increasing pain happening more and more were becoming constant. In 1998, thorough testing (discogram, MRIs, EMGs, i.e demonstrated I had a "bad" back). I almost fell off the litter when the x-ray doctor told me.
These were extensive and because of years of the "failure", permenant nerve damage has remained even though some did get better. I had a posterior cervical fusion C4-C7 and 6 weeks later anterior cages and posterior fusion L3-S1 Lumbar area. I developed a post-op hematoma and infection of the lumbar fusion which worsened the neurogenic bowel and I needed 2 bowel operations and am left with a functioning colon but only 18 cm. The neurogenic bladder did become better in time.
I am sorry this is so lengthy but if I can help anyone, just a little more. I know length can turn people off! I developed scar tissue in the spinal cord arachnoiditis (lumbar area found in my testing before my refusions) that causes a lot of chronic pain, had nerve pain and chronic pain, which worsened as the years have gone by. Due to the nerve damage to my bowel, plus certaain medications, gastroparesis (decreased contraction of the nerves to the stomach) which can be very serious. I had botox to the LES plus take medicine to help the stomach to contract. Also, my fusion healed crooked, and I have "torticollis" (very painful), and get botox every 3 months. Many of my problems went undiagnosed for years, thus causing permanence of my symptoms to some degree.
I do apologize for the length. I do not want to bore or act like I have it worse than others. If I can help anyone or if anyone can help me. I greatly would appreciate it. I have tried many "mental" and "physical' therapies plus my TENS unit as an adjuvant but still need my chronic pain and gastric medications. Some of the chronic pain medications are continuing to "destroy" the stomach nerves which really upsets me. I'd love to get off everything but after all these years and all the complications, am loosing hope. I keep praying.
Best to you with your ankle. I am sure you have your good days as well as bad and the "weather" isn't always your friend. It is funny how so many have told me they can predict the weather from their "bone'' injuries and I must agree LOL. Take care. Joan

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Thank you Justin and I gladly will share my story if it can help anyone. It is very lenghty so I will try to keep it as abbreviated as possible but to the point. I can understand some of what physical therapy you "might" have gone through post-op with an ankle fusion (had a total rt knee and lt hip replacement). You are correct...long and hard.
I injured my back as a nurse involving a patient. For 2 years I was misdiagnosed as a "lumbar strain" when actually it was a cervical cord compression at C5 to C7. I did have a slight herniation at L4 and slippage and most pain seemed to come from there. My bowel and bladder were affected, legs were weak and arms. I worked in the NICU as "light-duty" using a special back brace but over 2 years continually symptoms became worse. The head of physical therapy stated my EMG showed more from the cervical or upper thorax than lumbar. I started to pronounced arm weakness, neck pain,and cervical headaches. The physiatrist stated, "I tell the doctors to always check the whole back because often the problem is coming elsewhere and not where the patient's pain is." My doctor "knew" better and thought MS but the MRI was negative.
To shorten the story, I went to the"pioneer of back surgery" in Philadelphia (an orthopedic surgeon I knew) and saw his neurologist. First glance he noticed in my face the abnormal jaw reflex and the change in the curvature of my neck into an "L" shape. I had almost a "total" compression C5-C6 and C6-C7 just about as bad. My doctor stated I should have been dead or a quadriplegic and was amazed I was even walking. I had an anterior fusion 2 years after my initial injury (1994) and then the slippage and herniation L4-L5 worsened (I was working part-time as an instructor at my hospital).
I needed trimming L4 and fusion L5-S1 with hardware posterior in 1995 and kept working. My symptoms improved with some neurological deficits remaining but not that severe. Pain only when walking too much and not taking enough breaks. As time went on, I started have all the original symptoms reoccur.
I had what is called a "failed" fusion. My fusions were unstable and areas above and below were herniating or impinging nerves. The peripheral nerves to arms, legs, bowel and bladder and now increasing pain happening more and more were becoming constant. In 1998, thorough testing (discogram, MRIs, EMGs, i.e demonstrated I had a "bad" back). I almost fell off the litter when the x-ray doctor told me.
These were extensive and because of years of the "failure", permenant nerve damage has remained even though some did get better. I had a posterior cervical fusion C4-C7 and 6 weeks later anterior cages and posterior fusion L3-S1 Lumbar area. I developed a post-op hematoma and infection of the lumbar fusion which worsened the neurogenic bowel and I needed 2 bowel operations and am left with a functioning colon but only 18 cm. The neurogenic bladder did become better in time.
I am sorry this is so lengthy but if I can help anyone, just a little more. I know length can turn people off! I developed scar tissue in the spinal cord arachnoiditis (lumbar area found in my testing before my refusions) that causes a lot of chronic pain, had nerve pain and chronic pain, which worsened as the years have gone by. Due to the nerve damage to my bowel, plus certaain medications, gastroparesis (decreased contraction of the nerves to the stomach) which can be very serious. I had botox to the LES plus take medicine to help the stomach to contract. Also, my fusion healed crooked, and I have "torticollis" (very painful), and get botox every 3 months. Many of my problems went undiagnosed for years, thus causing permanence of my symptoms to some degree.
I do apologize for the length. I do not want to bore or act like I have it worse than others. If I can help anyone or if anyone can help me. I greatly would appreciate it. I have tried many "mental" and "physical' therapies plus my TENS unit as an adjuvant but still need my chronic pain and gastric medications. Some of the chronic pain medications are continuing to "destroy" the stomach nerves which really upsets me. I'd love to get off everything but after all these years and all the complications, am loosing hope. I keep praying.
Best to you with your ankle. I am sure you have your good days as well as bad and the "weather" isn't always your friend. It is funny how so many have told me they can predict the weather from their "bone'' injuries and I must agree LOL. Take care. Joan

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Have been having constant severe lower back pain for past 7 years with increasing numbness/weakness down right leg. I have asked my doctor for many years to please order an MRI so we can see what is going on. He says over and over that it is not needed. He finally relented about a week ago, as I am now (as of a few months back) in a wheelchair 24/7 due to unbearable back pain. My doctor has given me nothing for pain nor ever given me any type of muscle relaxers. He said it best, "to tough it out". He also will not refer me to specialist as he says this is not necessary either..
Results of my MRI:

"L1-L2: No significant disc bulge. No spinal canal stenosis or neuroforaminal narrowing.

L3-L4: Diffuse disc bulge with superimposed right subarticular zone disc extrusion, with approximately 11 mm caudal migration of disc material.
There is bilateral facet arthropathy and facet effusions. There is spinal canal stenosis, primarily secondary to disc bulge. There is narrowing of the lateral recesses bilaterally, with abutment of the descending right L4 nerve roots.
There is severe right neural foraminal narrowing.

L4-L5: Broad-based disc bulge. There is moderate bilateral facet arthropathy. There is moderate right neural foraminal narrowing.

L5-S1: Broad-based disc bulge.. Moderate bilateral facet arthropathy with facet effusions bilaterally. Moderate bilateral neural foraminal narrowing, greater the right.

S1-S2: Broad-based disc bulge. Severe bilateral facet arthropathy, with a left facet effusion. Extraforaminal synovial cysts are noted to project anterolaterally from the left facet joint, with significant encroachment upon the exiting nerve roots. There is an additional small synovial cyst projecting inferiorly from the facet joint. Mild right and moderate left neural foraminal narrowing."
END OF MRI REPORT.

Please, please help. I don't know where to turn, and I don't even begin to understand the MRI results. My doctor just told me , "Nothing to worry about."
But pain increases daily and I have no quality of life.

Jump to this post

Have been having constant severe lower back pain for past 7 years with increasing numbness/weakness down right leg. I have asked my doctor for many years to please order an MRI so we can see what is going on. He says over and over that it is not needed. He finally relented about a week ago, as I am now (as of a few months back) in a wheelchair 24/7 due to unbearable back pain. My doctor has given me nothing for pain nor ever given me any type of muscle relaxers. He said it best, "to tough it out". He also will not refer me to specialist as he says this is not necessary either..
Results of my MRI:

"L1-L2: No significant disc bulge. No spinal canal stenosis or neuroforaminal narrowing.

L3-L4: Diffuse disc bulge with superimposed right subarticular zone disc extrusion, with approximately 11 mm caudal migration of disc material.
There is bilateral facet arthropathy and facet effusions. There is spinal canal stenosis, primarily secondary to disc bulge. There is narrowing of the lateral recesses bilaterally, with abutment of the descending right L4 nerve roots.
There is severe right neural foraminal narrowing.

L4-L5: Broad-based disc bulge. There is moderate bilateral facet arthropathy. There is moderate right neural foraminal narrowing.

L5-S1: Broad-based disc bulge.. Moderate bilateral facet arthropathy with facet effusions bilaterally. Moderate bilateral neural foraminal narrowing, greater the right.

S1-S2: Broad-based disc bulge. Severe bilateral facet arthropathy, with a left facet effusion. Extraforaminal synovial cysts are noted to project anterolaterally from the left facet joint, with significant encroachment upon the exiting nerve roots. There is an additional small synovial cyst projecting inferiorly from the facet joint. Mild right and moderate left neural foraminal narrowing."
END OF MRI REPORT.

Please, please help. I don't know where to turn, and I don't even begin to understand the MRI results. My doctor just told me , "Nothing to worry about."
But pain increases daily and I have no quality of life.

Jump to this post

Have been having constant severe lower back pain for past 7 years with increasing numbness/weakness down right leg. I have asked my doctor for many years to please order an MRI so we can see what is going on. He says over and over that it is not needed. He finally relented about a week ago, as I am now (as of a few months back) in a wheelchair 24/7 due to unbearable back pain. My doctor has given me nothing for pain nor ever given me any type of muscle relaxers. He said it best, "to tough it out". He also will not refer me to specialist as he says this is not necessary either..
Results of my MRI:

"L1-L2: No significant disc bulge. No spinal canal stenosis or neuroforaminal narrowing.

L3-L4: Diffuse disc bulge with superimposed right subarticular zone disc extrusion, with approximately 11 mm caudal migration of disc material.
There is bilateral facet arthropathy and facet effusions. There is spinal canal stenosis, primarily secondary to disc bulge. There is narrowing of the lateral recesses bilaterally, with abutment of the descending right L4 nerve roots.
There is severe right neural foraminal narrowing.

L4-L5: Broad-based disc bulge. There is moderate bilateral facet arthropathy. There is moderate right neural foraminal narrowing.

L5-S1: Broad-based disc bulge.. Moderate bilateral facet arthropathy with facet effusions bilaterally. Moderate bilateral neural foraminal narrowing, greater the right.

S1-S2: Broad-based disc bulge. Severe bilateral facet arthropathy, with a left facet effusion. Extraforaminal synovial cysts are noted to project anterolaterally from the left facet joint, with significant encroachment upon the exiting nerve roots. There is an additional small synovial cyst projecting inferiorly from the facet joint. Mild right and moderate left neural foraminal narrowing."
END OF MRI REPORT.

Please, please help. I don't know where to turn, and I don't even begin to understand the MRI results. My doctor just told me , "Nothing to worry about."
But pain increases daily and I have no quality of life.

Jump to this post

Have been having constant severe lower back pain for past 7 years with increasing numbness/weakness down right leg. I have asked my doctor for many years to please order an MRI so we can see what is going on. He says over and over that it is not needed. He finally relented about a week ago, as I am now (as of a few months back) in a wheelchair 24/7 due to unbearable back pain. My doctor has given me nothing for pain nor ever given me any type of muscle relaxers. He said it best, "to tough it out". He also will not refer me to specialist as he says this is not necessary either..
Results of my MRI:

"L1-L2: No significant disc bulge. No spinal canal stenosis or neuroforaminal narrowing.

L3-L4: Diffuse disc bulge with superimposed right subarticular zone disc extrusion, with approximately 11 mm caudal migration of disc material.
There is bilateral facet arthropathy and facet effusions. There is spinal canal stenosis, primarily secondary to disc bulge. There is narrowing of the lateral recesses bilaterally, with abutment of the descending right L4 nerve roots.
There is severe right neural foraminal narrowing.

L4-L5: Broad-based disc bulge. There is moderate bilateral facet arthropathy. There is moderate right neural foraminal narrowing.

L5-S1: Broad-based disc bulge.. Moderate bilateral facet arthropathy with facet effusions bilaterally. Moderate bilateral neural foraminal narrowing, greater the right.

S1-S2: Broad-based disc bulge. Severe bilateral facet arthropathy, with a left facet effusion. Extraforaminal synovial cysts are noted to project anterolaterally from the left facet joint, with significant encroachment upon the exiting nerve roots. There is an additional small synovial cyst projecting inferiorly from the facet joint. Mild right and moderate left neural foraminal narrowing."
END OF MRI REPORT.

Please, please help. I don't know where to turn, and I don't even begin to understand the MRI results. My doctor just told me , "Nothing to worry about."
But pain increases daily and I have no quality of life.

Jump to this post

Thank you Justin and I gladly will share my story if it can help anyone. It is very lenghty so I will try to keep it as abbreviated as possible but to the point. I can understand some of what physical therapy you "might" have gone through post-op with an ankle fusion (had a total rt knee and lt hip replacement). You are correct...long and hard.
I injured my back as a nurse involving a patient. For 2 years I was misdiagnosed as a "lumbar strain" when actually it was a cervical cord compression at C5 to C7. I did have a slight herniation at L4 and slippage and most pain seemed to come from there. My bowel and bladder were affected, legs were weak and arms. I worked in the NICU as "light-duty" using a special back brace but over 2 years continually symptoms became worse. The head of physical therapy stated my EMG showed more from the cervical or upper thorax than lumbar. I started to pronounced arm weakness, neck pain,and cervical headaches. The physiatrist stated, "I tell the doctors to always check the whole back because often the problem is coming elsewhere and not where the patient's pain is." My doctor "knew" better and thought MS but the MRI was negative.
To shorten the story, I went to the"pioneer of back surgery" in Philadelphia (an orthopedic surgeon I knew) and saw his neurologist. First glance he noticed in my face the abnormal jaw reflex and the change in the curvature of my neck into an "L" shape. I had almost a "total" compression C5-C6 and C6-C7 just about as bad. My doctor stated I should have been dead or a quadriplegic and was amazed I was even walking. I had an anterior fusion 2 years after my initial injury (1994) and then the slippage and herniation L4-L5 worsened (I was working part-time as an instructor at my hospital).
I needed trimming L4 and fusion L5-S1 with hardware posterior in 1995 and kept working. My symptoms improved with some neurological deficits remaining but not that severe. Pain only when walking too much and not taking enough breaks. As time went on, I started have all the original symptoms reoccur.
I had what is called a "failed" fusion. My fusions were unstable and areas above and below were herniating or impinging nerves. The peripheral nerves to arms, legs, bowel and bladder and now increasing pain happening more and more were becoming constant. In 1998, thorough testing (discogram, MRIs, EMGs, i.e demonstrated I had a "bad" back). I almost fell off the litter when the x-ray doctor told me.
These were extensive and because of years of the "failure", permenant nerve damage has remained even though some did get better. I had a posterior cervical fusion C4-C7 and 6 weeks later anterior cages and posterior fusion L3-S1 Lumbar area. I developed a post-op hematoma and infection of the lumbar fusion which worsened the neurogenic bowel and I needed 2 bowel operations and am left with a functioning colon but only 18 cm. The neurogenic bladder did become better in time.
I am sorry this is so lengthy but if I can help anyone, just a little more. I know length can turn people off! I developed scar tissue in the spinal cord arachnoiditis (lumbar area found in my testing before my refusions) that causes a lot of chronic pain, had nerve pain and chronic pain, which worsened as the years have gone by. Due to the nerve damage to my bowel, plus certaain medications, gastroparesis (decreased contraction of the nerves to the stomach) which can be very serious. I had botox to the LES plus take medicine to help the stomach to contract. Also, my fusion healed crooked, and I have "torticollis" (very painful), and get botox every 3 months. Many of my problems went undiagnosed for years, thus causing permanence of my symptoms to some degree.
I do apologize for the length. I do not want to bore or act like I have it worse than others. If I can help anyone or if anyone can help me. I greatly would appreciate it. I have tried many "mental" and "physical' therapies plus my TENS unit as an adjuvant but still need my chronic pain and gastric medications. Some of the chronic pain medications are continuing to "destroy" the stomach nerves which really upsets me. I'd love to get off everything but after all these years and all the complications, am loosing hope. I keep praying.
Best to you with your ankle. I am sure you have your good days as well as bad and the "weather" isn't always your friend. It is funny how so many have told me they can predict the weather from their "bone'' injuries and I must agree LOL. Take care. Joan

Jump to this post

Have been having constant severe lower back pain for past 7 years with increasing numbness/weakness down right leg. I have asked my doctor for many years to please order an MRI so we can see what is going on. He says over and over that it is not needed. He finally relented about a week ago, as I am now (as of a few months back) in a wheelchair 24/7 due to unbearable back pain. My doctor has given me nothing for pain nor ever given me any type of muscle relaxers. He said it best, "to tough it out". He also will not refer me to specialist as he says this is not necessary either..
Results of my MRI:

"L1-L2: No significant disc bulge. No spinal canal stenosis or neuroforaminal narrowing.

L3-L4: Diffuse disc bulge with superimposed right subarticular zone disc extrusion, with approximately 11 mm caudal migration of disc material.
There is bilateral facet arthropathy and facet effusions. There is spinal canal stenosis, primarily secondary to disc bulge. There is narrowing of the lateral recesses bilaterally, with abutment of the descending right L4 nerve roots.
There is severe right neural foraminal narrowing.

L4-L5: Broad-based disc bulge. There is moderate bilateral facet arthropathy. There is moderate right neural foraminal narrowing.

L5-S1: Broad-based disc bulge.. Moderate bilateral facet arthropathy with facet effusions bilaterally. Moderate bilateral neural foraminal narrowing, greater the right.

S1-S2: Broad-based disc bulge. Severe bilateral facet arthropathy, with a left facet effusion. Extraforaminal synovial cysts are noted to project anterolaterally from the left facet joint, with significant encroachment upon the exiting nerve roots. There is an additional small synovial cyst projecting inferiorly from the facet joint. Mild right and moderate left neural foraminal narrowing."
END OF MRI REPORT.

Please, please help. I don't know where to turn, and I don't even begin to understand the MRI results. My doctor just told me , "Nothing to worry about."
But pain increases daily and I have no quality of life.

Jump to this post