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Anyone have Myelofibrosis (CMS-HCC)?

Blood Cancers & Disorders | Last Active: Feb 14 3:28am | Replies (24)

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Profile picture for samlupowitz @samlupowitz

Good morning, Lori.

No, just the Cotellic. I do take some meds for blood pressure and thyroid, but that’s about it.

I will say this though - and it’s
kind of in response to your comment regarding the human body - I’m no expert - just a guy with common sense, I think, and my common sense way of thinking leads me to believe that extreme fasting - meaning, 48, 72, 100 hour plus fasts - are cancer killers. I further gather from all my experiences that although many doctors are wonderful - and many aren’t - there does seem to be a disconnect in the profession, whereby, as a whole, they don’t seem to be open to the very obvious idea that we are what we eat, we are how
much we eat, and that just maybe we ought to allow
our bodies to do what they’re capable of doing by not inundating our system with food every few hours - which our bodies simply don’t need. It’s just an addiction like all others. We don’t need to be constantly eating.

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Replies to "Good morning, Lori. No, just the Cotellic. I do take some meds for blood pressure and..."

Hi @samlupowitz. I’m in thought alignment with you. I remember from an early age when my mom would say, “You are what you eat”. That little nugget has stuck with me throughout my entire life. Our bodies are created with the ability to heal. What we put into them, long term, I believe has an impact on every cell. Unfortunately we can’t control every aspect of input into our bodies with pollutants, toxic chemicals, gamma radiation, etc., but it’s up to us to do the ‘best we can with what we know.” Alas, even our greatest attempts at remaining healthy can go awry. I did everything I could in my adult life to avoid getting cancer. Having a blood cancer never even entered my thoughts. Well, life had other plans….
Anyway, back to what you’re saying…There are some very interesting studies discussing the health benefits of fasting. While in recovery from my bone marrow transplant I had a supportive conversation with my dietitian regarding fasting. However at the time, since I was already malnourished it was not even a discussion! But there was mention of the benefits of intermittent fasting and for the most part, I guess that’s how I live. Also, I’m no longer a vegetarian but follow the Mediterranean diet with healthy proteins, whole grains, veggies, with avoiding excess carbs/sugar. Lots of exercises, mental activities, solid sleep and the like.
Finding doctors who align with your thoughts is another issue. Functional Medicine Doctors are less conventional and so if you’re finding it challenging securing a doctor who shares your views, you might want to consider a FMD. https://www.ifm.org/functional-medicine

Wishing you continued good health. Thank you for sharing what has been working for you. How often do you have follow-up labs?