@rw5473

You might be interested in the discussion about simulators for neuropathy. I had a Burst DR spinal cord stimulator implant in June for the neuropathy pain in my feet, and after a few adjustments, it's giving me full relief. I do still take a low dose of morphine sulfate, but I plan to try tapering off it and see if I still need it.

The discussion is in the chronic pain group, a thread headed "has anyone had a stimulator implant", or something close to that. Others might benefit from reading about your experience, as many people have questions about it.

Jim

My Dr. And I have talked about the stimulater ,He doesn't believe it will give me relief as,I have bone pain, in my back n legs,upper extremities severe nerve damage from 4 failed neck surgeries .
All plates screws n bolts.
But i appreciate the information.

Their are good surgeon's n bad ,
My first two surgeries were failed,because the Dr.came in drunk.
Almost killed me.
Another, surgeon who was,subing,happened to see,what was going on, and saved my life.
3rd was Emergency surgery, broke my neck n auto accident, N hospital in Alaska, sent me out with broken neck,
I had neck brace on for a week,
My husband took me straight to the hospital here,when I got home,
Wouldn't let me leave, b4 they screwed it back on,no choice of Surgeon.
So he left gap in ,vertabrae was pinching
Spinal cord.
So ,my husband past 3 months after, N had to have it done again.
Know numb from head to toe.
Neck pain dizziness..

@dx311mddnos I’m so sorry to hear of your dilemma. I hope your pain, although bad, will continue to let you work. Do you have a spouse that you just do not want to rely on? You mentioned having kids, can they help at all? I would hate to have to ask my son or daughter but I know they would want to help if they didn’t live far away.
I really hope you manage to find a solution for your situation.
JK

@phob you mention living in Maine. Are you in southern Maine so going to Boston would be doable? I have run unto a number of people from a ways up in Maine who go to Boston. My brother lives in Cape Elizabeth and uses doctors in Maine supplemented by doctors in Boston.
JK

Thank you @eileena. I tried acupuncture without success but plan to try with another practitioner. I have done some tai chi but prefer the few times I tried Qi Gong (Qi Gong? Sp) I live in Maine where there doesn't seem to be an abundance of alternative therapies or I just haven't found them. I have an excellent DO who does very gentle manipulation. I think my biggest problem is I had 4 joint replacements in such a short time that my body is in some sort of shock. Everyone who has done work on me states how tight my whole body is and that's how I feel. I'm tight and don't seem to be able to relax my body. It's been suggested that it's a response to having so many replacements all within 4-6 months of each other that my body is waiting for the next thing to happen. It makes sense and that's what it feels like. I'm also on many meds, morphine, muscle relaxers, something for anxiety plus something to wake me up from the fog the meds have me in. This has been going on for years. Any suggestions to stop this chronic back/neck pain?

I have had something called IMT, Integrative Manual therapy, used on me during part of recovery from one surgery or another. It is a very slow process, very gentle, but it helped get me through to the other side of the pain. http://www.instituteofimt.com/what-is-imt.php
I am not sure if it would help, but look over the information from that site.

Also, just range of motion for 4 solid months followed by, now, strengthening, for a badly torn shoulder. Surgeon tells me he wished all would improve like I have following that surgery that stitched together the 4 torn tendons in my left shoulder.

Your body needs a lot of time to heal from the assault it has endured. I have recently come across some information about breathing you might give a try. Do NOT breathe through your mouth. Only through your nose. I started being conscious of whether I was breathing through my nose or mouth. I seem to climb stairs far better. To get to my shop without the elevator I have to climb up 31 stairs. My legs had become so very week that it was quite a struggle. I am trying out this nose only breathing while climbing the stairs. I'll let you know how much it improves or not in a few weeks when we are back on a regular schedule at work. Holidays coming up allow a break in the regular schedule.

Sometimes really gentle pressure while massaging can help move the chi around. If you choose to do this, being it is a back, not a hand or knee, have someone apply light pressure and basically sweep the chi toward one of the spots on your body. It is a flushing motion and moves the chi around. Another of my PTs in the past taught me to do this sweeping motion on one of my arms while in recovery. It added to my wellness and I still do this whenever the pain is something I can manage on my own.

I do hope some of wha tI have learned is helpful to you.

@contentandwell. Thank you for your reply. Yes, I am in Southern Maine. I'm in Falmouth and have thought often about going to MA. There are so many MD's in Boston it's overwhelming. How do you know who to go to? Glad you are feeling content and well. Suggestions re: pain MD's would be greatly appreciated.

@eileena. Funny you should mention IMT. That was the first therapy I tried after my fall and before the 4 joint replacements. After my fall on the ice, there was something wrong in my chest. I couldn't breathe except to belly breathe, I was in constant pain and it felt like something right in the middle of my chest that felt out of place. Like I said I live in Falmouth ME and found a practitioner right here in Falmouth. I went to this group for 3 years. Can you believe insurance paid for it? I went several times a week and we kept "peeling the onion" which he said could take a long time. There were other PT's in the office that he was training them. He was not present. I finally decided to go to Conn. to see the Giammattaeos myself in a group setting the offered. I saw Dr.(?) Giammatteo once and he prescribed arnica. I felt like it was 3 wasted years and my MD said if it wasn't working after 3 years we should stop it. I felt no better, probably worse after 3 years. It's possible IMT works but not with this group. Some of the PT's were reading from books what to do next in an entire treatment! I now see a DO who does very gentle manipulation. I am interested in chi,reiki,acupuncture and many of the alternatives because at this point I think my whole body is just so tense and could use some calming down. Sure I'll still hav e pain but I'm oping not to feel so anxious about it all the time. Thanks for responding and thank you also for info re: alternative therapies. Has anyone else had good luck with alternatives. Tired of being tired all the time and waiting for the next pill.