Chronic Back Pain for Years

I wish I could be of some helop to you. Back pain is awful. I suffer 24/7 and had spinal fusions and both hips replaced. My back has too many problems. Susrgery would never help. Injections and therapy have not helped. I stay away from all heavy drugs. Ibuprofen (2 three times a day). Sometimes it makes it bearable. I will not try a stimulator, so I am limited as to what to do.

Hi, My name is Eve. I too have had back problems for years. I have had two surgeries, Kypoplastie, pain stimulator and injections. None worked for me. I don't want to rely on pain medications either. I have degeneration and 5 compression fractures. If I don't do anything, I don't hurt to much, but if I try to do anything like walking much or using my arms, then I really hurt. I am now trying water exercise. Hope it will help. I really feel for anyone who has back problems. One time when I was waking up from surgery, my girls told me I kept telling them to 'Take care of your back' over and over again! I hope that someday they will come up with something to help us! Thanks for letting me vent.

Hi, My name is Eve. I too have had back problems for years. I have had two surgeries, Kypoplastie, pain stimulator and injections. None worked for me. I don't want to rely on pain medications either. I have degeneration and 5 compression fractures. If I don't do anything, I don't hurt to much, but if I try to do anything like walking much or using my arms, then I really hurt. I am now trying water exercise. Hope it will help. I really feel for anyone who has back problems. One time when I was waking up from surgery, my girls told me I kept telling them to 'Take care of your back' over and over again! I hope that someday they will come up with something to help us! Thanks for letting me vent.

Hello, New here. After reading every one of your stories I don't feel so alone. I also realize many people seem far worse off than myself. I too have been worried about all the new regulations on pain medicine. It makes zero sense to take away drugs that often can and do change people lives for the better. I would not be able to get out of bed let alone keep working 50 hours a week without help. It drives me crazy that a few bad eggs ruin it for all of those who need them. I have a failed fusion currently. Found out about 18 months ago. My rods fractured in 3 places and a few screws have also detached. The pain I have been experiencing is excruciating and some days seems unbearable no matter the amount of pills I take. My next step is acquiring insurance and finding a neurosurgeon that isn't affraid of touching me. Dealing with the stress and anxiety daily is also very difficult. I constantly worry that even if I Can find a Dr willing to help that I won't be able to support my family while I recover. Life is so hard sometimes. I have incredible pain tolerance but I'm really getting tired of dealing with this every day of my life.

Thank you Justin and I gladly will share my story if it can help anyone. It is very lenghty so I will try to keep it as abbreviated as possible but to the point. I can understand some of what physical therapy you "might" have gone through post-op with an ankle fusion (had a total rt knee and lt hip replacement). You are correct...long and hard.
I injured my back as a nurse involving a patient. For 2 years I was misdiagnosed as a "lumbar strain" when actually it was a cervical cord compression at C5 to C7. I did have a slight herniation at L4 and slippage and most pain seemed to come from there. My bowel and bladder were affected, legs were weak and arms. I worked in the NICU as "light-duty" using a special back brace but over 2 years continually symptoms became worse. The head of physical therapy stated my EMG showed more from the cervical or upper thorax than lumbar. I started to pronounced arm weakness, neck pain,and cervical headaches. The physiatrist stated, "I tell the doctors to always check the whole back because often the problem is coming elsewhere and not where the patient's pain is." My doctor "knew" better and thought MS but the MRI was negative.
To shorten the story, I went to the"pioneer of back surgery" in Philadelphia (an orthopedic surgeon I knew) and saw his neurologist. First glance he noticed in my face the abnormal jaw reflex and the change in the curvature of my neck into an "L" shape. I had almost a "total" compression C5-C6 and C6-C7 just about as bad. My doctor stated I should have been dead or a quadriplegic and was amazed I was even walking. I had an anterior fusion 2 years after my initial injury (1994) and then the slippage and herniation L4-L5 worsened (I was working part-time as an instructor at my hospital).
I needed trimming L4 and fusion L5-S1 with hardware posterior in 1995 and kept working. My symptoms improved with some neurological deficits remaining but not that severe. Pain only when walking too much and not taking enough breaks. As time went on, I started have all the original symptoms reoccur.
I had what is called a "failed" fusion. My fusions were unstable and areas above and below were herniating or impinging nerves. The peripheral nerves to arms, legs, bowel and bladder and now increasing pain happening more and more were becoming constant. In 1998, thorough testing (discogram, MRIs, EMGs, i.e demonstrated I had a "bad" back). I almost fell off the litter when the x-ray doctor told me.
These were extensive and because of years of the "failure", permenant nerve damage has remained even though some did get better. I had a posterior cervical fusion C4-C7 and 6 weeks later anterior cages and posterior fusion L3-S1 Lumbar area. I developed a post-op hematoma and infection of the lumbar fusion which worsened the neurogenic bowel and I needed 2 bowel operations and am left with a functioning colon but only 18 cm. The neurogenic bladder did become better in time.
I am sorry this is so lengthy but if I can help anyone, just a little more. I know length can turn people off! I developed scar tissue in the spinal cord arachnoiditis (lumbar area found in my testing before my refusions) that causes a lot of chronic pain, had nerve pain and chronic pain, which worsened as the years have gone by. Due to the nerve damage to my bowel, plus certaain medications, gastroparesis (decreased contraction of the nerves to the stomach) which can be very serious. I had botox to the LES plus take medicine to help the stomach to contract. Also, my fusion healed crooked, and I have "torticollis" (very painful), and get botox every 3 months. Many of my problems went undiagnosed for years, thus causing permanence of my symptoms to some degree.
I do apologize for the length. I do not want to bore or act like I have it worse than others. If I can help anyone or if anyone can help me. I greatly would appreciate it. I have tried many "mental" and "physical' therapies plus my TENS unit as an adjuvant but still need my chronic pain and gastric medications. Some of the chronic pain medications are continuing to "destroy" the stomach nerves which really upsets me. I'd love to get off everything but after all these years and all the complications, am loosing hope. I keep praying.
Best to you with your ankle. I am sure you have your good days as well as bad and the "weather" isn't always your friend. It is funny how so many have told me they can predict the weather from their "bone'' injuries and I must agree LOL. Take care. Joan

Well, I certainly can relate. I had the Nevro HF-10 neneurostimulator trial a few weeks back. It was wonderful for releiffor L1 through L5 back down my legs and into my feet. This, by the way, also can reduce greatly or nearly totally, the upper back, neck and into the shoulders sepending on placement of your leads. I have severe sciatica problems along with the low back. I am having it permanently implanted November 27th. it's an excellent option as I do not want to be on these pain medications any longer.There's just no life in those. I highly recommend that you go see your pain management doctor and look into having the trial done for yourselves.

Randall

@jlfisher56 I'm so sorry you have suffered for so long. Pain is not fun as we here all know it. Except for offering this advise about how I manage my own pain associated with hip arthritis I am not able to offer more. I do exercise, not overly so, as my arthritis can only withstand a certain amount. The exercises are gentle range of motion prior to bedtime and I make sure to keep hydrated as that helps carry off inflammation. I found that for my arthritis I needed to do side lunges and swinging my legs outward to strengthen the glut muscles and I sure suffered for the next few days. I think there may be some type of slow moving exercise for you....maybe Tai Chi as it is very slow and gentle movements. Though I still do need to take perkoset type meds some evenings if I do those few exercises it is very helpful. Please do try some gentle exercises and don't overdo it. Then get back to us to let us know how you feel.