Living with Neuropathy - Welcome to the group

@neurobob No, it's the Boston Scientific Alpha Wavewriter.

Hi, I'm new to the group. I appreciate the opportunity to participate. Forgive me if this has already come up, I wanted to ask if anyone has tried low dose naltrexone, and how long before it stared to help (if it did). Thanks!

Hi. New to the group. I jumped the gun and responded in another thread, but I thought I would introduce myself.

PN started last July (2025). I have trouble sleeping, because the tingling, burning, and pain in my forearms and hands are relentless.

I have approached the issue thru:
PT - Some inconsistent relief.
Gabapentin - No relief and horrible side effect.
Acupuncture - Some inconsistent relief.
Cold Laser - Some inconsistent relief (???)
Tylenol/Advil - No relief
External Cremes (including CBD based) - Some inconsistent relief.
Sleeping positions - No relief
Arm Pillows - No relief
Deep Tissue Massage - Some inconsistent relief.
Chiropractic Adjustment - Unknown (PCP told me to stop)

Just within the last week, I am seeing some relief from acupuncture, massage focused on my shoulders, naproxen, and a mini traction device for my neck.

Welcome @stjohnsriverrat, Thanks for sharing your experience with PN. Looks like you have tried a lot of different treatments looking for more relief from the PN. Sounds like a familiar journey that many have been on here in the Neuropathy support group on Connect. It definitely helps to learn as much as you can about the condition and what treatments are available that might provide some relief. If you haven't tried the search function on Connect yet, it is really helpful for finding different discussions. Here's a search of Connect for "PN what helps" - https://connect.mayoclinic.org/search/.

You mentioned that your PN started July 2025. Have you been diagnosed with a specific cause for your PN?

Welcome @labe, You might find this discussion started by @suz helpful.
-- Low Dose Naltrexone: https://connect.mayoclinic.org/discussion/low-dose-naltrexone-2/

How long have you had neuropathy?

@johnbishop I had to pay for my own MRI, but I have degenerative disk and narrowing at C5/6.

Don't get me started on the insurance company.

I am going to see a neurosurgeon soon, but I am 99.99999% against what I have researched as the next treatment steps.

I am 78 years old going through 16 th year with neuropathy and tired of a new cure every day.i tried lazer,acupuncture and many many false items.my feet are now going numb at night which is very painful.is the end game to have them removed?took 9 gabepentin per day for two years and no change

Hello @billurzada, Welcome to Connect. I have the numbness in my feet along with some tingling also but no real pain or burning. It still is the pits but fortunately I've never had to take any medication treatments because there are none that help with numbness. Distraction is one of my biggest aids in helping me ignore the numbness. Anything to keep my mind from focusing on the numbness can help.

I would keep looking for different treatments that might provide some relief and do your research on those new so called neuropathy cures. One thing that helps me is to keep the skin on the legs and feet from drying out by using a moisturizer/lotion of some sorts. I do like the LifeFlo Magnesium lotion which seems to have a calming effect on my legs and feet but I've used many different ones including Vicks VapoRub which some folks have found that helps with painful feet. You might find it helpful to scan through the comments and discussions by other members on "foot pain at night what helps". Here's a search of Connect that shows the discussions and member comments - https://connect.mayoclinic.org/search/.

Have you looked through the different treatments on the Foundation for Peripheral Neuropathy? - https://www.foundationforpn.org/treatments/

@billurzada I too am on gabapentin but have no side affects . I still have neuropathy and chronic back pain from a failed spine surgery. I saw an exercise program on utube that I’m going to try. I deal with a pain specialist for back pain and the only thing that helps is Norco. I’m not giving up, even at 73.

Hi, just found this group today. I have had PN for a couple of decades. Mine is alcohol, 5 years sober now. I have it in my fingers and from my feet to my waist. 5 years ago I began exercising, last year I averaged 8 miles per day on my feet. This did wonders for balance and not walking with clukiness. I could move normally. Recently I have had to take days off from the routine. I noticed that in less than two days my legs are weak and I’m walking clunky and the tightness is at a higher level. I’m wondering if I am going to have to move 8 miles a day the rest of my life or become in a wheelchair? Does anyone else find that big a difference between exercise and not exercising? Also gabbapentin does nothing but make me forget. Ha ha