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Any Lyme disease sufferers out there?

Posted by Sundance(RB) @sundance6, Aug 27, 2025

I came down with what doctors and we decided was Lyme Disease 8 years ago!
I still have "EPISODIES" where i hurt all over or in a particular spot and extreme fog and dizziness! I take Oxycodone to help my headaches that I have had from the beginning! The rest I have to live with!
I subscribe to the Lyme web pages! Always looking for answers!
I guess I'm reaching out for some new things or research someone has done to help! Or just some help dealing with it!
In doing my initial research 8 years ago I read a quote, "you can put 30 people in a room with Lyme and they will have 30 different symptoms!"
My last PCP , that I fired, said he talked to 2 infectious disease doctors and they said that "LYME DOES NOT EXISIT!"
It's very frustrating to have your life turned upside down and so many people don't understand!
Thanks, RB

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debbcoast7 | @debbcoast7 | Jan 14 2:37pm
In reply to @covidstinks2023 "Sundancerdb78, Hey There! I have a dear fried who has severe Lyme Disease with mold toxicity...." + (show)
Profile picture for covidstinks2023 @covidstinks2023

Sundancerdb78, Hey There! I have a dear fried who has severe Lyme Disease with mold toxicity. He went to a Lyme Disease Center in Florida that helped him greatly. I will get the name if you want me too. It was out of pocket.

I must say, they saved his life as he was in such bad shape. He also had been told there was not such thing as Lyme Disease in his state. This disease has reeked havoc on his body, but, I will say they helped him there.

Praying for you this a.m. Blessings & Prayers....

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@covidstinks2023
That's so nice of you to reply yes and covid does stink!!!
I'm trying to fix up a cabin so I can have rested for caregivers myself and people that are suffering. I just learned I have lime last week and just peace but investigating seeing what else I can do.

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debbcoast7 | @debbcoast7 | Jan 14 2:38pm

Thank you for your post I think a lot of people don't understand about it yet but just if you can pray in the spirit pray in the spirit Romans hate 24 and 8:20 through 8:28 I think to heal our infirmities

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debbcoast7 | @debbcoast7 | Jan 14 7:58pm
In reply to @debbcoast7 "Thank you for your post I think a lot of people don't understand about it yet..." + (show)
Profile picture for debbcoast7 @debbcoast7

Thank you for your post I think a lot of people don't understand about it yet but just if you can pray in the spirit pray in the spirit Romans hate 24 and 8:20 through 8:28 I think to heal our infirmities

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@debbcoast7 oops sorry I think it's Romans 8:24 not h a t e oh boy forgive my typos 😅

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debbcoast7 | @debbcoast7 | Jan 14 10:54pm

I spoke with the health department person in my county regarding the tick bite I had December 23rd in particular. And that I still have the tick and a refrigerator which I still have today . I know I can send it somewhere but the health department said that she was a veterinarian before she retired from that and there are no places that test ticks. I knew right away she was wrong and I let her know.

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debbcoast7 | @debbcoast7 | Feb 10 4:22pm
In reply to @sundance6 "car0, Your post made me cry! Your advice was Heartwarming! ONE OF THE BEST SUMATIONS OF..." + (show)
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car0,
Your post made me cry!
Your advice was Heartwarming!
ONE OF THE BEST SUMATIONS OF LYME I HAVE SEEN!
Through the 8 years I have read thousands of pages of research and all of the prominent doctors books on Lyme!
So Sad many of doctors refuse to admit it exist!
Being a long time suffer my journey has reached a new unfortunately a new stage! In reading the latest information I have found the Late Stage Lyme that Naprapathy is symptom some older people develop!
Started first in my feet! My toes feel like I have a 1,000 needles in them! Especially debilitating when I get into bed for the night!
Many of the same symptoms are exasperated by the Naprapathy! Dizziness, balance, ability to walk and so on!
My Best to both you and your son!
I hope more Lyme Suffers join like we had several years ago1
THANKS!
RB -SUNDANCE

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@sundance6 I had a lime diagnosis in December of 2025 so basically ... I get extremely tired and I'm frustrated because of it

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Sundance(RB) | @sundance6 | Feb 11 11:08am

debbcoast7, so sorry to hear! I hope you don't have the same journey as mine! So many unexplained symptoms I have had in my eight years dealing with Lyme!
Go to the Lyme sites and they will tell you about what others with Lyme have dealt with!
I will go on line and give you the sites I read every week!
RB

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Sundance(RB) | @sundance6 | Feb 11 11:17am
In reply to @debbcoast7 "@sundance6 I had a lime diagnosis in December of 2025 so basically ... I get extremely..." + (show)
Profile picture for debbcoast7 @debbcoast7

@sundance6 I had a lime diagnosis in December of 2025 so basically ... I get extremely tired and I'm frustrated because of it

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@debbcoast7 I'm back!
The 3 sites I gather information on Lyme are; Lymedisease.org, Generation Lyme, and Lyme Wire!
Hope these help you understand Lyme a little better!
Blessings,
RB

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