Connect
← Return to Anyone have Myelofibrosis (CMS-HCC)?
Discussion
Anyone have Myelofibrosis (CMS-HCC)?
Blood Cancers & Disorders | Last Active: Feb 14 3:28am | Replies (24)Comment receiving replies
I was diagnosed June 2025 MPL mutation with SRSF2 mutation. I’m on a clinical trial for hemoglobin. My WBC and platelets are close to normal. No Jakifi yet but my spleen has started getting bigger. Mayo will do an ultrasound in March so will determine then if adding more drugs. I’ve heard the current opinions for Myelofibrosis are good for regulating blood issues and spleen. Are you considering a stem cell transplant?
Replies to "I was diagnosed June 2025 MPL mutation with SRSF2 mutation. I’m on a clinical trial for..."
@davi0937
Doctors said I am a good for stem cell replacement. But not sure I can survive the procedure. I am turning 65 this year and until I can get my health in a better place, not sure I want to try that yet.
Connect
@davi0937
My spleen and liver have advance swelling before I started the Jakafi, as well as fatigue and shortness in breath. I believe the spleen has become smaller only due to that are of my body no longer as swelled. But only info I have is monthly blood tests to confirm what is happening now. Did have a Cat-scan to verify the size of the organs, but nothing recent. I dont think I have the Jak2 issue but would have to check my tests again. Seems like I have had all kinds of tests. This all started because my Rheumatologist finding things in the blood tests they did not want to discuss without a hematologist looking at the results first.