Nothing has ever helped my Tinnitus: Any suggestions?

Posted by buddysmom07 @buddysmom07, Oct 2, 2023

I’ve had tinnitus since 1995 and nothing has ever helped! Mine was a traumatic injury and I have hearing aids they don’t help tinnitus but I can hear a little better! I’ve been taking lipoflavinoid for 2 years and it doesn’t help either! I play soft music to help with sleep but mine is constant buzzing like locusts! Any suggestions please?

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carol1024 | @carol1024 | Feb 3 5:13am

In reply to @sunflower76 "https://youtu.be/5MhtTzYjEH4?si=k3yzZ7dDt_drgxP1" + (show)

@sunflower76 no pill will help tinnitus since it is a "precieved" rather than a physical condition. It has to do with "empty sound" where connections are trying to be made but there's nothing there for the sound waves to bounce off of. I got really deep into the causes of it once and it was interesting. I've had vertigo and tinnitus for over 40 years. I'm to the point now I don't hear it half the time. I just focus on other noise like the TV and I run fans for background noise. I guess chatGPT would give the most accurate description of it though but I don't do that app. Lol

ttutor | @ttutor | Feb 4 10:07am

I think you have done a great job as many people just don't know what to do. There is no magic pill however there are many support structures such as the American Tinnitus Association that can help. Also wondering how your hearing aids are programmed, I have seen many hearing professionals just slap on a pair of aids as they should also help your tinnitus not just hearing. I have some suggestions for you.

Julie, Volunteer Mentor | @julieo4 | Feb 4 1:09pm

In reply to @ttutor "I think you have done a great job as many people just don't know what to..." + (show)

@ttutor and everyone: I reiterate checking for information on the website of the American Tinnitus Association; http://www.ata.org This week is "Tinnitus Awareness Week". They have several opportunities for learning and discussion listed that might be helpful. If you decide to participate, let us know what you learn.

There is quite a bit of research going on right now on tinnitus. We can hope for a cure in the future. Stay on top of it!

ATA is a non profit organization so of course they would like people to donate to their cause. If it matters to you, consider it. You don't have to donate to access their information.

ttutor | @ttutor | Feb 4 2:01pm

In reply to @julieo4 "@ttutor and everyone: I reiterate checking for information on the website of the American Tinnitus Association;..." + (show)

@julieo4 Thank you for bringing this up. This past Monday evening the ATA had fundraisers across the U.S. for Texas Roadhouse and its former owner Kent Taylor. This donation money is critical to cure trials. The webinars are quite interesting and the website is full of helpful information. The ATA is the oldest tinnitus non profit organization out there who has a staff that works tirelessly to help people struggling with tinnitus. They also have peer leaders who you can call and support group leaders like myself who conduct monthly on line meetings.

annie941 | @annie941 | Feb 5 12:08am

In reply to @carol1024 "@annie941 I guess we can each come to a personal conclusion for what we think is..." + (show)

@carol1024

@annie941 I guess we can each come to a personal conclusion for what we think is responsible for our tinnitus. There is a video on YouTube that demonstrates how to help relieve it.

You interlock your fingers behind your head below the occipital bone and tap. It actually helps somewhat.

I'm now battling another demon as of Feb 28th 2025, Stage 4 endometrial cancer. I've just had my 13th chemo treatment on Jan 29th.

Honestly, up until about 6 or 7 months ago , I did not notice the tinnitus. I guess my brain was dealing with being directed at me important things going on. It comes and goes. I run a fan at night so I have noise to listen to.

It has been proven that tinnitus is NOT an ear problem and you just reiterated that statement. It is a nerve problem that affects the neurons BETWEEN the brain and the hearing mechanism of the ear.

We each can draw our own conclusions though because there isn't a doctor around that can definitively explain where it comes from.

There are exercises though that do tend to help and give reprieve if only for a little while. Maybe it wasn't as noticeable to me for 6 months because my brain was so dedicated and in shock at the diagnosis of cancer I needed to put things in order, so to speak.

I have since had a hysterectomy, battle neuropathy, although that has gone from a 10 to a 2 with treatments for it. It does flare up with chemo. I get treatments every 3 weeks and get 6 treatments that are between 6-8 long.

Like I said though I have so many other things to redirect my brain to that I rarely hear the tinnitus at times. My balance is terrible for days after chemo so my brain has to pay attention to that area.

I also have an on body shot mechanism, Unenyca, that administers a shot 27 hours after chemo that stimulates bone marrow to produce white blood cells to help immune system fight the cancer. Because the chemo kills good cells too, the shot has to race to produce more good ones in the marrow to continue the fight. That in turn causes immense bone pain that is longer than the initial 3 or 4 days now but morphine and hydrocodone helps with that.

So for those days where I'm in pain at an 8-10, even with pain medication, having balance issues so bad that I will and have fallen several times which prompted me to get a cane, so weak I spend most time moving at a snails pace, I have barely noticed the hissing in the ears because my brain is concentrating on too many other things.

I'm just taking one day at a time now but honestly I'd much rather have the tinnitus than the uncertainty of cancer. I've also downloaded a water sounds app and will listen to rain on a tin roof with faint thunder in the background and it sounds so good. I often set it for 2 hours and will fall asleep with it on my shoulder while in my recliner.

Thank you for the reply and added info. I believe it's going to take different kinds of information from different people going through the many different types of medical problems to narrow down what's responsible for tinnitus.

I hope we don't ever give up bringing attention to this at times life altering condition that affects so many people. It is puzzling to say the least because there seems to be a variety of things that could be responsible.

Have a very blessed day and luck with your issues. Thanks again. ❤️

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@carol1024 Hi again, and I just want to say that I am So sorry that you have the cancer you mentioned. Whenever I get an ailment I usually check the natural way to heal the body.
The guy that posted about a drug for tinnitus that you commented about said that they think this drug can help with OXIDATIVE STRESS in the body, which they think can cause tinnitus.

I just want to comment about this. This website talks about it as well, and it can cause a host of other diseases! It's called: better health dot vic dot gov dot au backslash health backslash healthyliving backslash antioxidants.

I forgot about this. Although I studied Food and Nutrition in business & industry at TWU.
Free radicals run amuck in the human body and can overload and can cause a host of diseases. I've been under a lot of stress and these past few years I show signs of a lot of the symptoms of 'oxidative stress' in the body.
Common Physical & Mental Symptoms
Fatigue: Persistent tiredness and lack of energy.
Cognitive Issues: Memory loss, difficulty concentrating, or "brain fog".
Inflammation: Pain, stiffness, or swelling in muscles and joints, potentially leading to conditions like arthritis.
Skin Problems: Premature aging, wrinkles, fine lines, dryness, and dullness.
Sleep Disturbances: Insomnia or poor sleep quality, leading to daytime tiredness.
Frequent Illnesses: A weakened immune system leading to more infections.
Headaches & Migraines: Frequent head pain can be a warning sign.
I will purchase Glutathione to help with my oxidative stress problem. It could help you as well. But you can check with your doc to make sure of course.

janieben | @janieben | Feb 8 5:45pm

I have been to a PA who has treated many tinnitus patients with DMSO with great success. Has anyone ever used DMSO? I am very interested in your experience...

deberh | @deberh | Feb 9 1:02am

I sympathize with you and I fully understand your frustration with tinnitus. As far as I researched, there is hardly two people with similar tinnitus symptoms, and what provides relief to one or a few does not work for others.
My tinnitus was for several years intermittent, sometimes stronger, sometimes noticeable only during the night. Due to my severe hearing loss, it would worsen my hearing regardless which program I would use with my hearing aids app. I tried acupuncture at a clinic run by Chinese doctors. It worked better than anything else I had tried. Unfortunately, after about a week, the tinnitus would slowly reappear, but not as intense as before.
After 2-3 weeks I would get another session. The con: very costly. In October 2025 I got a cochlear implant. Prior to activation of the implant I had a few times very strong tinnitus, mostly at night. After activation of the implant it still would appear, mostly at night without wearing the sound processor, but after a short while it disappeared or I don’t notice it. So far, 4 months since I got the cochlear, I guess I have been lucky not being bothered by it. If cost is not a major issue, and you would consider acupuncture, I strongly recommend you look for an acupuncturist who specifically lists tinnitus treatment among the offered therapies.

pht1123 | @pht1123 | Feb 9 7:33am

Hi. Sorry to hear about your tinnitus - which can be so intense. I had this related to prednisone for my asthma. I did have hearing loss (one ear was significantly worse than the other). I got a hearing aide which has a "tinnitus mask" to try to distract from the sounds and also improve hearing in that ear. As I decreased the prednisone, it did improve for me - and now it is considered that I have Menere's disease with the tinnitus. I tried chiropractor - but really did not help. However, decreasing sodium in the diet and not drinking soda (regular or diet), have been helpful. Don't know if this will help you, but hope it does. Good luck.

pht1123 | @pht1123 | Feb 9 7:34am

PS - It is worse at night since that is when the hearing aid comes out and there is not much to do about masking the tinnitus. White sounds, soft music, etc. did not work for me.

annie941 | @annie941 | Feb 9 4:20pm

In reply to @janieben "I have been to a PA who has treated many tinnitus patients with DMSO with great..." + (show)

@janieben Hi, no I have never heard of this treatment personally. But I'd be game to try anything natural. Can you give any info about this? Thanks so much!