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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (1163)Comment receiving replies
@walkinggirl
I’m no expert but I am an amateur genealogist and I speak on DNA topics. Our DNA never changes so if they keep a record of it there would be no need to retest it. My assigned Geneticist said they would keep it on record and it would be used for research, this was at Mayo. I will see if I can reach her to clarify whether contact will be made, if our gene is identified.
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@joeymopete Mayo was also the place where my DNA was tested, Lauren was my contact genetic counselor. I am glad to read that you received more specific information about retesting, I did not. Please let us know if they initiate contact when more genes are known and people can be rescreened. BTW, I am an amateur genealogist, too! Thank you for the information.