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Anyone else have Superior Mesenteric Artery Syndrome (SMAS)?
"With only about 500 reported cases in the history of English-language medical literature, recognition of SMA syndrome as a distinct clinical entity is controversial, with some in the medical community doubting its existence entirely. SMA syndrome is also known as Wilkie's syndrome, cast syndrome, mesenteric root syndrome, chronic duodenal ileus and intermittent arterio-mesenteric occlusion. It is distinct from Nutcracker syndrome, which is the entrapment of the left renal vein between the AA and the SMA.
SMA syndrome is estimated to have a mortality rate of 1 in 3. Delay in the diagnosis of SMA syndrome can result in fatal catabolysis (advanced malnutrition), dehydration, oliguria, electrolyte abnormalities, hypokalemia, acute gastric rupture or intestinal perforation (from prolonged mesenteric ischemia), gastrectasia, spontaneous upper gastrointestinal bleeding, hypovolemic shock, aspiration pneumonia, or sudden cardiovascular collapse from increased velocity of bloodflow in the SMA due to the reduced mesenteric angle. Go here to this link to know about my fight http://rare-disease-day-belfast-2011.blogspot.com/2011/02/paula-mattis-is-real-super-hero-she.html
Superior mesenteric artery (SMA) syndrome is a very rare condition characterized by recurrent vomiting, abdominal distention, weight loss, and postprandial distress. The cause is compression of the duodenum between vessels and the vertebrae and paravertebrae muscles when the angle between the superior mesenteric vessels and the aorta is lower than 18°. The diagnosis is difficult and usually is made by exclusion. Conservative management is helpful at first; however, symptom recurrence would indicate surgical treatment. EVERY LIFE COUNTS Let's get people the Public, Doctors start taking this more seriously and get Awareness/Prevention, researching possible causes and work towards early detection
Thanks, Paula
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I was diagnosed with superior mesenteric artery syndrome in May of this year. I need help getting treated. Severe weight loss
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1 ReactionMy daughter has been vomiting daily for a month and a half, she was diagnosed with superior mesenteric artery syndrome, at the moment we are trying to increase her weight with nutrition, but it is impossible, we were told about parenteral nutrition, is there anyone who did parenteral nutrition and it went well, maybe is there anyone from Greece?
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1 ReactionI am 28 years old, and have been experiencing some really bad health issues for the last year+. Within this last month, the dramatic weight loss I’ve went through has caused me to develop SMA Syndrome. I am very malnourished, and have a consultation with my surgical unit to discuss possible surgery to fix it. I’m now in a position where I’m not gonna be able to make that appointment, and will have to cancel it. It’s taken months to get where I am now, and this appointment for consultation isn’t even until almost the end of March. I don’t know what to do. Because I’m getting progressively worse every single day.
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1 ReactionI’m 28 years old trans man, and was diagnosed with SMA a month or so ago. There’s definitely something bigger that caused it for me, but the threat the SMA presents on my life is scary. I’ve dropped down to 93 pounds. I cannot eat solid foods, and even the protein shakes that I’ve been getting by with, have started getting thrown up every single time I drink them. I’m in constant horrific pain, some of which is so sudden and so harsh I scream. I’m at a loss, I was told to talk to the surgical unit at the medical facility I go to(only place I can go on that insurance), and I can’t talk to anyone until beginning of April. I’m afraid I’m going to die.
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2 ReactionsSMA is a very serious problem. But without my surgery I would not be here now. And trust me open surgery to repair any SMA issues is not fun. I am post 3 years, and having difficulty in maintaining my weight (115lbs. Now. Should be 165lbs.) Recovery was longer then I expected (61 years old at the time of surgery) but a necessary procedure. I 🙏 the best for you! Take care (listen to your Dr.s) and good luck 🤞
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1 ReactionMy daughter in law has been diagnosed with SMA and she’s only 22. No one in Arkansas seems to know anything about this and it was by sheer luck they found out what was wrong with her. She has a picc line now and has to be on TPN 18 hours a day. These “flare ups” as I call them keep her from eating for days to weeks on end and the pain is excruciating as I’m sure you all know. I was shocked to learn how rare this is. Any advice anyone has would be greatly appreciated!
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3 ReactionsThe veterans affairs hospital put me on Olanzapine after 10 years of trying to find a remedy. I'm 36 and was diagnosed at 26. I've been on the med for 3 weeks and it's given my an appetite and helps the vomiting and stomach pain. Hope it helps.
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1 ReactionHas anyone had SMAC (Superior Mesenteric artery calcifications?) I just found out that I had this And a 1 cm splenic artery aneurysm.
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1 Reaction@jamiemj I have calcification and opaque-ing. I honestly have no idea what that means still 🤦🏻♀️
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2 ReactionsAfter battling with daily MAJOR bloat for 3 years, having multiple tests x2, having a collection of Rx's that fill a large Amazon box, 2 days ago I had an Arterial Mesenteric Ultrasound. My G.I. doc learned that this test might yield something--finally. I had always thought and said that I felt that blood wasn't flowing properly in my gut area, but no previous test would show anything wrong except a "moderate stool burden."
Results came that day: arterial blockage enough to warrant vascular intervention. A vascular surgeon read the scan. So I have my PCP referring me to his department which is actually close to where I live. I am crossing my fingers that I will be able to be seen soon. My condition causes daily pain, affects walking, head pain, and forget eating. Eating makes it worse. I've read that this condition occurs in "older" age (I'll be 69 in 2 weeks). Until age 66, I was the picture of perfect perfect health.
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