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fernie74 avatar

Spine Tuberculosis contamination

Infectious Diseases | Last Active: Feb 14 10:22pm | Replies (3)

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Profile picture for Jennifer, Volunteer Mentor @jenniferhunter

@fernie74 Welcome. Thank you for your service. Are you still suffering with an infection from prior fusion? Does that surgery need revisions or is the instability related to another place in the spine? Are you able to walk?

Did you get approval from your VA insurance to be referred to Mayo?

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Replies to "@fernie74 Welcome. Thank you for your service. Are you still suffering with an infection from prior..."

@jenniferhunter Thanks. I had active spine TB for 5 months. There is instability from the cervical spine to the lumbar spine. It has desiccated discs. It also caused 2 syrinx. One in the cervical area. The other in whole of the lumbar spine and is expending and the pain to walk, sit, stand is incessant. My whole spine has been devoured by this nasty bacteria. Supposedly I’m in remission but I’ve been warned about prednisone. My body is rejecting the bacteria contaminated bone graft so this is long term or until my body can’t take anymore. I use a wheelchair and spend 90% of my time in bed. The dr. told me to try not moving my spine too much as the syrinx can rupture. The VA finally approved me after 8 months of begging for specialized care. I’m waiting on the neuro-surgery team at Mayo to review my case. The TB sequelae is what is killing me.