TIA symptoms but ALL tests come back negative for anything

Posted by calanbrown @calanbrown, Mar 14, 2025

I am looking for someone that has had a similar experience. TIA symptoms,was brought to the emergency room and admitted and treated as possible stroke patient. All tests come back negative for stroke related attack. Brain and heart and blood showed nothing indications of anything at all. Ruled out diabetic problems, medication problems, drinking or drug problems, physical or physical activity problems.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

Profile picture for llynst @llynst

Yes! Over and over. It’s been going on for over 4 years now.
He falls with no use of legs and has uncontrollable shakes and talks gibberish. By the time we get to the ER all symptoms are gone. At first they just sent him home. He’s been to many doctors and have had MANY tests.
About a year ago at ER they looked at his liver enzymes AGAIN. This time they were high enough for us to see a liver Dr. It’s been a Long journey but he now has been diagnosed with an auto immune disease called PSC.
He has liver cirrhosis because of this and now has aged out for a transplant! I had taken videos of when he was having his “episodes” but liver specialist says it’s not what caused this. He is getting weaker, loosing weight and I’m scared. There are no cures for this PSC but some drugs ( for PBC) that can help some symptoms.
He takes so many pills (13morning & 9 evening) and is having “brain fog” I have to do a lot of things for him. He also sleeps ALOT! This is not an answer for you but thought I’d give you a rundown of his journey!
P.S. he’ll be seeing another neurologist this week. He has essential tremors that are now debilitating. Hopefully, they can at least help with this.

Jump to this post

@llynst
Wow that sounds like me. All Doctors say I had a TIA stroke but all test come back normal. I have these flashed when I am driving and when home. My Primary doctor called it seizures. I am going to a Neurosurgeon next. I am confused.

REPLY

You basically repeated my story from last year. 3 TIAs in eight days in March and then another one in September but no results from any tests. Reminds you that life is short and live each day to it’s fullest

REPLY
Profile picture for debhealth12 @debhealth12

@llynst
Wow that sounds like me. All Doctors say I had a TIA stroke but all test come back normal. I have these flashed when I am driving and when home. My Primary doctor called it seizures. I am going to a Neurosurgeon next. I am confused.

Jump to this post

@debhealth12 I have done every test you can think of from the neurologist and cardiologist and everything comes back saying I am VERY healthy. Strokes run in my family on both parents side so maybe it’s just genetic for me.

REPLY
Profile picture for debhealth12 @debhealth12

@cheyne
I just experience the same thing. I still have to have a MRI, but I had 2 CT Scans, in hospital. I did go under anesthesia the day before so the hospital blamed it on that. I also was scheduled for surgery a few days later. The Anesthesiologist absolutely blamed it on TIA stroke. He told me they don’t show up on CT scans. I was fine after surgery no issues. Then I go to my Primary
Doctor who scared me to death. He told me I am at a high risk for major stroke. I went for Echocardiogram and a test to check my neck, all came back negative so now I am confused.

Jump to this post

@debhealth12 bubble test, die test, at home monitoring for months all came back as me being just fine. All doctors are very confused. I believe this is a very rare phenomenon. That is why I created the original post on this forum to see if there were other people out there with similar conditions. Not common enough for doctors to realize it’s a real problem and could use some studying at some university.

REPLY

Been there, done that! Same exact thing happened to me in 2024. They called it a TGA. However last November I had an MRI which showed up a possible stroke, but my Nero Dr. didn't know when, and he was not very concerned either.

REPLY
Profile picture for debhealth12 @debhealth12

@cheyne
I just experience the same thing. I still have to have a MRI, but I had 2 CT Scans, in hospital. I did go under anesthesia the day before so the hospital blamed it on that. I also was scheduled for surgery a few days later. The Anesthesiologist absolutely blamed it on TIA stroke. He told me they don’t show up on CT scans. I was fine after surgery no issues. Then I go to my Primary
Doctor who scared me to death. He told me I am at a high risk for major stroke. I went for Echocardiogram and a test to check my neck, all came back negative so now I am confused.

Jump to this post

@debhealth12
Hi,
I'm sceptical of Dr's comments that are surely designed to shock us into action. Granted they mean well but scaring people isn't a smart option in my view. I always retort, when am I likely to have these strokes you have been promising me, how much longer, it's been years and I'm still waiting. There has been no response to that or more correctly I get a dumb look and silence!
I have some serious health issues that cannot be treated as I react severely to all known medications for these issues, now all they can administer is the shrug of the shoulder with the all too familiar blank look and the words, they can't offer anymore.
My bloods come back negative except for the health issues I deal with and they remain constant. Outside the guidelines but I survive.
I have stopped blood thinners, take low doses of BP meds and insulin which does little for me as they are such low doses, but persist in the hope I will get used to the side effects and may be able to increase the doses soon. But alas, I continue to react to them all still.
I have now decided to stop the medications as the side effects are greater than the cause or symptoms that they are designed to treat. My kidney function is constantly slipping away 3B, BP is as sky high as ever, diabetes T2 is slowly doing its damage with numb legs and feet and my glucose level is always above the guideline, Autonomic polyneuropathy has corrupted my digestive system, my cholesterol is way above normal even though it has come down from 9.8 and my enlarged heart is still taking care of business. So, I'm in pretty good shape unmedicated,
I guess I'm a big-hearted sweetie all said and done!
Cheers

REPLY

In my case, it was the other way around! I live in a popular retirement area of the country. Many baby boomers have moved here in the last few years, overwhelming the one hospital! So, minimal wellness checks are given, by the Dr’s, with a very limited time frame element, once a year. Neurologist appointments are rushed as well. So, when I complained to neurologist, ophthalmologist, and primary care physician, about seeing double, side by side, and seeing double one on top of each other, along with obvious eye ptosis, and seeing flashing lights, to the upper right side of my vision, for over a year or two, none of them seemed too concerned, saying probably transient symptoms. Also, this last year, I suddenly had urgency bladder issues, along with big time walking problems, where I walked like a drunk, and my legs wouldn’t obey my commands! That one was scary! When I told the neurologist, he dismissed it and I had complained of pins and needles sensations, in arms and legs, to all my Doctor’s. None of them even bothered to use a pin, to check my hands, feet, arms and legs. That went on for several years. My neurologist recently retired, and a new, young neurologist was hired by the hospital! Right away, even though she was busy, she got out a pin, when I explained about the pins and needles sensations. She checked it out, and came up with a polyneuropathy diagnosis. Then I told my new neurologist about losing my balance, and having 6 falls within the last year ( with minor injuries ), along with my vision problems, bladder , and walking problems. She seemed alarmed, and ordered an urgent MRI! The MRI revealed that I had had one old lacunar ischemic stroke, and 2 recent lacunar strokes! Unbelievable! I’m in rehab, now!

REPLY
Profile picture for calanbrown @calanbrown

You basically repeated my story from last year. 3 TIAs in eight days in March and then another one in September but no results from any tests. Reminds you that life is short and live each day to it’s fullest

Jump to this post

@calanbrown Great advice, that I have applied in my daily life! Thank you! Life is precious!! In the current cruel, mean, world, that us regular folks live in, these days, it has become difficult for many, especially the more vulnerable citizens , including elderly, like me, and young people, just starting out! An example of this is part of the story of my life. Directly because of Federal Administrative decisions, last year, I lost my Medicare Advantage Insurance coverage, along with thousands of other people, at the end of 2025. An Insurance broker signed me up for a Medicare Supplement plan in November, 2025! With the thousands of applicants signing up for Medigap, who lost Medicare Advantage coverage in 2025, the Medigap Insurance Company that I signed up for, through my broker, became overwhelmed with applications, and, in my case, in spite of my broker and myself checking the status, of my application, on a daily basis, which included me faxing my paperwork to them, proving that my Medicare Advantage coverage was terminated on December 31,2025, through no fault of mine, this Medigap Insurance Company would NOT approve my Medigap policy, until FEBRUARY 2,2026! Meanwhile, I ended up having a major medical crisis, in January, where, because of a diagnosis an by a Neurologist, serious neurological symptoms, required an urgent MRI imaging, also, ultrasound of caratoids, bloodwork, and more Cardiac and Neurologic Doctor visits! I was covered ( about 80% ), by Medicare A/B! Thank goodness for that! Anyway, I HAD NO MEDIGAP COVERAGE, for the remaining 20%. The Hospital Medical Providers where I live, were INDIFFERENT when I tried to explain to them that I had applied for Medigap coverage, but the approval had not happened yet, because the MEDIGAP provider was processing thousands of new Medigap approval applications, and was behind with their paperwork! Imagine me, a nearly 80 year old senior, possibly seriously ill, being harassed by hospital personnel, who told me, that they would NOT follow through, with the needed MRI, imaging, or the ULTRASOUND of the caratoid’s, unless I paid $280.00 for the 20% of the MRI cost, and the $150.00 cost of the ultrasound 20%! So I paid up! After the MRI, was analyzed, the Docs found out that I had several lacunar strokes! With my also having atrial fibrillation, I was put on a blood thinner, Eloquis, that cost me $650.00! I have been quite upset about all this! Oh well! Such is life in these difficult times, for an old man, like me!

REPLY
Please sign in or register to post a reply.