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Teresa- it's JJames, do you know about the sleeping issues of the morning time. every morning I can't move very well with the Parkinson's and it hurts to force myself to get up- and I can give my self permission to sleep- I'm at a lost- I know my DR said that will happen as the stages process( I'm already in stage 3- because of the agent orange- so they say? I know and cam feel my body changing at a rapid pace and the side affect show up more often- as again I have been told by the VA Parkinson's DR- the chemicals would speed up the process. Love to hear you wisdom and advice. JJAMES>
Replies to "Teresa- it's JJames, do you know about the sleeping issues of the morning time. every morning..."
<br><br><br><br><br>Wow John, that sounds aweful. So sorry that you are experiencing this. - <br>Terri M.<br> <br><br>
Thank you Teresa- I will do the things you said to the best of my ability- thank for your wisdom and help in this- I really-really appreciate it ALso the guilt is killing me when I can't help my wife more. JJAMES>.
@johnjames I am sure that your wife appreciates you JJames. For that matter, we all do! Teresa
<br><br><br><br><br>Hi John. I have guilt about that too with my spouse. He says he understands <br>and it is not a problem.<br> <br><br>
Windwalker- It's hard, when you know it's going to be a long time and you hope and pray- you can learn to help somehow. Thank you for sharing. JJAMES
I know what you mean. I have had a lot of guilt because of the pressure I've put on my wife over the past 15 years. She's been having a lot of pain in her hip, and it's becoming debilitating, so I try to do what I can and try not to burden her with any complaints. I know she loves me, even after 45 years of marriage, but even the best marriage suffers when stressors drag on with no end in sight. I suspect that most of us reading this have at some point dealt with guilt at some level, even if it's undeserved guilt. I'm thankful for a wife who's supportive.
Jim
@jimhd Thank you for your thoughts on this topic, Jim. Well said. Teresa
@johnjames I am sure all of us with such supportive spouses are thankful, and of course we are so fortunate to have those spouses. My husband is older than I am and he teases that he married a younger woman so I could take care of him in his old age but that has been reversed, although now I am doing great.
JK
@gailb @hopeful33250 Obviously I hope my husband never has to deal with a serious, long term condition but if that day does come I will certainly be more than happy to repay him for all he has done. He is amazing though, he looks at least 10 years younger than he is and is on no medications at all at 81! I kid him that I married him for his longevity genes.
JK
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@johnjames Thanks for your post, JJames. Yes, stiffness and pain make it difficult to get up. Do you take any of your PD medicines at bedtime or do you have your meds by your bedside so that you can take them when you first wake up? Sometimes a small night time dose is helpful for getting up without as much stiffness and pain. Also, if you can comfortably get into a hot shower, that will help as well. I one time read the Michael J. Fox takes a very long hot shower first thing in the morning in order to relieve the pain and stiffness. These are some ideas, I'll try and do some research on the Michael J. Fox website and see if I can come up with something else. Until then, best wishes and blessings to you and your wife. Teresa