Post Prostatectomy Two Week Progress
PART 1
First of all, I'd like to convey my sincere and heartfelt thanks to all of you on this forum for helping me come to my treatment decision. Your knowledge, advice, and experience that you’ve shared with me either directly, or just by my reading through all your posts have been a great resource to me. And thanks to the Mayo clinic and moderator of this forum for making its existence possible. And also a special thanks to my wife for all her help, without which this recovery would be much more difficult.
After years of steadily rising PSA, a couple of biopsies that found nothing, and then leveling out at a PSA around 12, my urologist said it was time for a new MRI. The MRI done in July 2025 found a larger PI-RADS 5 tumor, and a smaller PI-RADS 3 tumor, followed by a biopsy in August, which found that the larger tumor was a 3 + 4 = 7 with perineural invasion, and the smaller one was a 3 + 3 = 6.
I started researching prostate cancer, and its treatments in July, using reputable sources such as Mayo Clinic, John Hopkins, Harvard, NCI, the health services of Canada, the UK, Australia, and the Prostate Cancer Researchers Institute which has lots of excellent videos. I came to the conclusion that SBRT would be the treatment for me. I also took the advice of a lot of these sites and got second opinions. I got a second opinion on my biopsy pathology from a center of excellence, University of Wisconsin Madison Carbone Cancer Center, and also talked to one of their docs for a second opinion. They pretty much jived with what I was getting in my own local area. I got the decipher test on which I scored high. I also had a PSMA PET scan performed on me, and it showed no spread outside the prostate capsule. Then I heard about the Prostox test that can predict future serious genitourinary complications from radiation treatment. There's one for SBRT and one for CFRT. Unfortunately, I scored high risk on both, so I had to rethink my treatment, and I decided I'd go with prostatectomy. A 3 + 4 = 7 tumor contained within the prostate would normally mean I could even qualify for active surveillance. But because of my high decipher score and the fact that I had perineural invasion, I decided I better just get it out before it did spread. Just to note, the tests like Decipher, PSMA PET, and Prostox, I had to ask for. Maybe my doctors would have mentioned them to me, but I guess because of my research, I was on top of it, and got to it before they did. So, as many other people have said in this forum, you got to be your own advocate.
I scheduled my prostatectomy, and I had it two weeks ago today. It was a RALP, using a da Vinci machine. The surgeon said it went well with no complications except one which showed up on the post prostatectomy biopsy. The biopsy report said there was one positive margin. So that worried me at first, but my surgeon said that when he was pulling the prostate out, the region where the margin is stuck to the prostate capsule tore, so hopefully that is just, you know, a little hiccup in the process and not a true cancer margin. But we'll see on my future PSA tests if the PSA declines to undetectable. He was able to save most of my nerves, so ED hopefully won't be a long-term problem, and he said he was able to do something with the urinary sphincter that should make continence come back faster.
Interested in more discussions like this? Go to the Prostate Cancer Support Group.
Connect

PART 2
I spent one night in the hospital which was pretty rough. I was kind of out of it. My family was around which was good and they made me laugh, which was good for my spirits, but hurt the hell out of my abdomen. Went home with the standard catheter and also a Jackson-Pratt drain in my side. That was annoying. Of course, the catheter isn't fun but it wasn't painful, just inconvenient. The Jackson Pratt came out 4 days later, and the catheter came out 8 days later. As others have noted in this forum, the one good thing, if you can call it that, of the catheter was that you never have to pee, just drains right out. I couldn't sleep very well in my bed, which has a pretty soft mattress, making it hard to get out of once I got in, so I spent most of my nights with the catheter sleeping in a lazy boy fully reclined.
Each day since the surgery, I've made steady improvement in feeling stronger, less fatigue, and less pain. So progress on all fronts. Before the surgery, for about a month and a half, I had been doing my kegels, and once my catheter came out, I started doing them again and even though I had been doing them pretty strong before the surgery, I found it was kind of weak afterwards but the strength has been coming back. The continence is improving- when the catheter first came out, on that day and night I just leaked all the time. I wondered if this is the way it's gonna be, but it improved and now it's not too bad. I'd feel safe going to a store. I went from overdoing it with a depends coupled with a pad to just either the pad or depends, to now where I’m wearing regular boxer briefs with a pad. I'm careful about how I move so as not to make myself leak. You know, like breathing out when you stand up- that sort of stuff. Oh, one other thing: it took three days for me to have my first bowel movement. That was a huge relief. Went quickly to regular movements after that thanks to all the fruits and veggies my wife’s been feeding me. Excuse me, if this is too much information for you. But I figured that for the guys on this forum that's what they come here for; they want the straight talk. I know that’s one of the reasons I come here.
Prior to surgery, I took my dog for a long walks every day, usually a minimum of three and a half miles, often more. That works out to about seventy two hundred steps on my phone. Two days ago, just walking around my yard and in the house, I finally reached 7200 steps. Not all at once, but in like 2 sessions. Then today I was able to actually take my dog for a walk on the trail we normally walk on, she was happy as heck but we couldn't go as far as we normally go as I could feel myself getting tired. It felt great to be outdoors! I haven't driven yet. I was going to today but before my surgery, I'd put a snow blower behind my car in the garage for easy access, and I'll have to move that first before I can get the car out. Fortunately, we haven’t had any big snow storms in Wisconsin since the surgery. Just a series of light fluffy clippers that my wife can handle. I feel like I can drive though. By the way, for painkillers, they gave me some oxycodone to take home, and I only took one on the 2nd day when the pain got to be too much. Other than that, I've been taking Tylenol, and not all the time. For last few days, not at all.
On the ED front. You guys know that when you dream, you usually get erections, I don't know why; even if you're dreaming about browsing for a book in the library, you wake up and you’ve got an erection. Anyhow, a few times over the past couple weeks, when I've woken up from a dream in middle of the night, I’ve had a partial erection. So that's hopeful. Not going to worry about that for a while, though. The doctor's office told me that when I come back for my 6 week, check-up, they'll start talking about penile rehabilitation.
But yeah, that's where things stand for now. If you got any questions that I didn't cover go ahead and ask them, I'll try and answer them and keep you posted further down the line.
Once again, thanks for all of your support. Best of luck on your journey.
Quaddick
-
Like -
Helpful -
Hug
19 ReactionsQuaddick,
These details help those working through making decisions on how to move forward, as earlier ones did for you, me, and many others. Thanks and a speedy recovery to you.
Dave
-
Like -
Helpful -
Hug
5 ReactionsGood news. Did you get the result of the biopsy of the prostate after surgery?
That can really be informative about what’s going on.
-
Like -
Helpful -
Hug
1 ReactionJeff,
Yes:
Grade group 2 (Gleason Score 3 + 4 = 7) Percentage of Pattern 4: 11 - 20% Intraductal Carcinoma (IDC): Not identified
Cribriform Glands: Present
Estimated Percentage of Prostate Involved by Tumor: 21 - 30%
Extraprostatic Extension (EPE): Not identified
Urinary Bladder Neck Invasion: Not identified
Seminal Vesicle Invasion: Not identified
Lymphatic and / or Vascular Invasion: Not Identified
Perineural Invasion: Present
Invasive carcinoma present at margin
Linear Length of Margin(s) Involved by Carcinoma: Greater than or equal to 3 mm (non-limited)
Margin(s) Involved by Invasive Carcinoma: Left posterior
REGIONAL LYMPH NODES Regional Lymph Node Status: : All regional lymph nodes negative for tumor
Number of Lymph Nodes Examined: 3
pTNM CLASSIFICATION pT2 pN Category: pN0
On the positive margin; that worried me at first, but my surgeon said that when he was pulling the prostate out, and trying to spare my nerves, the region where the margin is stuck to the prostate capsule and tore. To pathologists using their ink, it would appear as a positive margin. My surgeon feels confident that he didn't leave any cancer behind. So hopefully that is just, you know, a little hiccup in the process and not a true cancer margin.
Thanks for all your helpful and knowledgeable posts on this forum.
Quaddick
-
Like -
Helpful -
Hug
6 ReactionsSounds as if you are progressing positively and that is good, of course.
Best wishes for continued improvement.
-
Like -
Helpful -
Hug
1 ReactionI am 69 & have RARP scheduled 3/13. I have a 6 & 3+4=7 lesion. They have me scheduled as going home (ambulatory after surgery. I thought I would stay over night but I would rather be home.
I appreciate the post op description.
-
Like -
Helpful -
Hug
4 ReactionsThanks for your story. I am having a prostatectomy on March 3. You were very helpful on what goes down afterwards.
-
Like -
Helpful -
Hug
2 Reactions@quaddick
Just to make you feel more confident ask the doctor to confirm that Cribriform Glands: Present Is related to small cribriform not large cribriform.
Good to see you’re still a 3+4 that’s a real positive thing. So many get upgraded.
It does mention PNI but that is really not something people normally have to worry about. It was interesting that in a recent video about active surveillance that doctor said they ignore that.
Now the issue the doctor say is nothing. i’m not saying it is significant, but this is from the NIH
In prostate cancer pathology, a non-limited surgical margin (linear length ≥ 3 mm) is clinically significant because it is a key predictor of biochemical recurrence (BCR)—the rising of PSA levels after surgery
Higher Recurrence Risk: A linear length of ≥ 3 mm is associated with a significantly higher risk of recurrence compared to "limited" margins (< 3 mm). One meta-analysis found that patients with margins ≥ 3 mm had a nearly twofold higher risk of BCR than those with smaller positive margins.
The fact that you are a 3+4 really does reduce the incidents of BCR, but you need to be aware that it’s possible. This is probably something you want to talk to the doctor about. Why did it come up ≥ 3 mm which is significant rather than < 3mm Which is not significance.
@quaddick Very very happy for you, Quaddick! Since finding out that you chose to go the "RALP, using a da Vinci machine" route, I've been researching prostatectomy in 75+ men. Not much out there... Excited to find a paper --scanned to the top and it was published in 20171
It was rewarding finding someone else who scored HIGH RISK on both Prostox Ultra (SBRT) and Prostox (CFRT). But the best part of this all, is you're happy with your decision. *And* I'm grateful that you've shown the way for my husband and me.
Live Long and Prosper ..V.
Warmest regards from Canada
@kjholz ,
Thanks for the well wishes. I'm happy that something in my posts was helpful to you. Yes it definitely is good to find another with high risk results on both of the Prostox tests. I thought, at first, that it mighty have been reported wrong as most people seem to only score high risk for one of them. I'm definitely glad to have gotten the test done and possibly have avoided a serious problem.
Best of luck to you and your husband. How'd you know I was a Star Trek fan and Spock is my favorite character?!
Live long and prosper!
Quaddick
-
Like -
Helpful -
Hug
3 Reactions