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Forteo (teriparatide) followed by HRT: My Experience
Osteoporosis & Bone Health | Last Active: Feb 20 8:32pm | Replies (190)Comment receiving replies
@goseve
Have you seen a good endocrinologist to do all the tests to check for any conditions or disease?
Another question why did you need bilateral hip replacements?
I gather that you have not had a TBS evaluation of your dexa score nor a REMS. Both of those would give us a better idea of your bone quality.
Put aside your fear of losing mobility, although I understand after the bilateral hip replacements why you are concerned. There are lots of things which you can do that will keep that fear from being a reality; the only thing you can do wrong is to do nothing. You are doing exactly what you need to do to protect yourself right now, researching and asking for input from others.
I am a strontium citrate user and a BHRT user. I am now in "normal" bone density and bone quality territory as per DEXA with TBS interpretation, no side effects, no fractures. So I really don't know much about Reclast.
I do know someone who does have knowledge though. His name is Michael, and he is an Inspire poster and a BHOF advocate. Here are links to his profile to contact him and to one of his posts. His profile link will have links to all of his posts and replies on Inspire.
New to osteoporosis meds post by Michael:
https://www.inspire.com/groups/bone-health-and-osteoporosis/discussion/new-to-osteoporosis-and-feeling-overwhelmed-this-training-will-help/
Link to contact Michael:
https://www.inspire.com/m/Michael_Lavacot/
Keep doing just what you are doing researching and talking with people. When you have enough knowledge you will be more confident and secure in any decision which you make.
If at any time you wish to learn about strontium citrate let me know, and I can provide that information. Strontium C may be begun and ended without any problems or side effects and works well with BHRT.
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@kathleen1314
Hi Kathleen. I needed bilateral hip replacements due to osteoarthritis. I also had bone spurs that were limiting my ability to move in certain ways and I had alot of pain due to the osteoarthritis.
I was interested in a REMS test and I called to schedule an appt. I asked if they could scan my hips and I was told that they couldn't due to the hip replacements and that they would only scan my back which is of no help because I do not have osteoporosis or osteopenia in my back. I asked if they would scan my forearm just to get an idea of my bone quality and they told me "they don't do that". That was very disappointing to hear.
I did have blood tests done by an endocrinologist and she said all my results looked good. I have not had a TBS evaluation.
I was interested in Storium Citrate but heard so many controversial opinions on it so I decided against it. I just started on a .50 transdermal estrogen patch in the hopes that it wil help my bone health. My endo dr. says that at my age it will not help but perhaps hold the bone that I have. I just don't know what to do.
The ortho surgeon says that my hip replacements are held in place by my bones and if the bones are weak then the replacements will not hold and there is not much that can be done at this point so I would be in a wheel chair. I am so afraid and just feel like it is a matter of time that this will happen to me. I don't have any children. I am married but I cannot expect my husband to care for me if I am in a wheelchair and I was denied long-I aterm care so this is so worrisome for me.
Thank you for all the info and the links you sent me. I am not very tech saavy so I am hoping that all my messages have gotten to you, apparently from your replies they have.
Thank you again Kathleen.