Oh, my dear woman. You are so young to be going through this. I am, too, but I am 82 and my husband is 79. The difference is that, thanks to long term care insurance and VA benefits, we have caregivers in the house much of the time. When I feel overwhelmed, as I often do, because caregivers can only do so much, I can go out for a bagel and a cup of coffee. The advice you have been given here is critical. I started this path with an attorney who has many older clients, but who is not exclusive to them. I learned that I had benefits I wasn’t even aware of. Because we don’t have children or, indeed, any other relatives within many hundreds of miles, resolving our situation was entirely on me. Many times I thought I would crumble. Sure, I prayed, but God helps those who help themselves. Area Agencies on Aging are often also places where people with disabled family members can turn, and I strongly recommend that you contact your local one for advice. People here are telling you that your lifestyle is not sustainable, and they are correct. I must often remind myself that 35% of caregivers predecease the person they are caring for—sometimes because they don’t make time to deal with their own health issues. I had two major surgeries this past year, one of which I kept ignoring due to my concern for my husband’s care if I had to be hospitalized. Well, I almost died. God did save me, and I realized that he still has work for me to do. Perhaps answering you is among those tasks. If this were in person, I would find ways to advise and help you. Since it is not, know that I am sending strong thoughts of kindness your way, and dearly hope you can feel my strong old arms around you. Bette
@bettes You are a gift to me this day. Thank you for your thoughtful and caring comment that touched my heart. Such good, kind advice for all of us caregivers...