← Return to Camzyos vs. Surgery
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Hypertrophic Cardiomyopathy (HCM) | Last Active: Feb 7 8:12am | Replies (6)
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Replies to "@mmicahk I avoided the surgery by having my Cardiologist prescribe me Camzyos 5 mg. My septum..."
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@manuelpo thanks for your comment and I’m glad that Camzyos is helping you!
It seems to help most in the comments I’ve read over time.
My anatomy isn’t as significant as yours, with only 1.4cm thickness, which is why they are checking my mitral valve, which may be more of mechanical issue and Camzyos wouldn’t solve that. As long as my TEE shows no major valve issues, I will be trying Camzyos.
The challenge I am factoring is long term considerations at my age of 45:
1) We don’t yet have long term data on efficacy over decades of life. I may need the surgical intervention anyway at some point and as told to me by my provider, surgery will help with recovery speed and less possible complications due to my age and current fitness level (works in my favor).
2) Unknown long term costs. Current insurance is $250/mo and for 40+ years (if it works that long) is quite a healthcare expense, on top of growing insurance costs. I’m realistic that as our bodies age, there will be other added medical expenses.
I currently exercise 4-5x a week but have noticed exercise capacity reduced at a slow pace over the last year. It keeps catching me off guard. The angina, fatigue, and reduced capacity will hopefully resolve with the Camzyos.