How can I keep myself upright while sleeping?

Posted by cjj2 @cjj2, Feb 1 9:38am

Seems like this would be a simple thing to do, but even with a wedge pillow I seem to slide down. Reflux wakes me up. I stop eating 4 hours before bedtime, but continue to drink water. I had an Ivor Lewis esophagectomy 4 years ago. For the past few months, I have had an irritated feeling in my throat & a dry cough. More recently, I have had occasional problems swallowing liquids - seems to go down the wrong way & sets off violent coughing. I’m worried about aspirating, but that’s another issue.
Any ideas for better upright sleeping?

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Profile picture for naoshapiro1 @naoshapiro1

@roch I bought a special mattress that fits on top of my mattress on Amazon. It was about $200 and I sleep with that Plus on pillows and I put a wedge underneath my knees so that I won't have a sore back and when I wake up at night, I make sure I'm still up high. I had to go on two omeprazole a day because I was having reflux episodes 40 mg in the morning and 40 mg at night at 7 PM. I get up at around 4:15 in the morning and start my exercise and my drinking water and then I eat it around 5:30 my first breakfast my second breakfast at 8:30 my lunch shit around 1 o'clock and my last meal at 4:30, which is a very very, very small meal. I try to drink about 10 glasses of water a day mostly because I'm the kind of person that makes stones, but I think it also helps my IBS. I'm almost 7 years past surgery, but I took swallowing lessons because I had aspirational pneumonia in July but that was because I had uncontrollable refluxes in December January, March and June and July and that's when I got on the extra omeprazole so I've only had two tiny little bouts of reflux since July nothing nothing nothing like what I had before when it was 40 minutes of burning throat coat. Tea is very helpful if you wake up with very bad burning at that time I also took Pepto-Bismol and Pepcid I also take three 20 mg of Pepcid a day. I do have trouble burping a lot, which cannot be fixed. Says my Gastro so I take two times at around 10:10 AM. I do have a lot of phlegm. I hope some of this helps you naomi shapiro.

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@naoshapiro1 Sorry for the two typos, I dont know how the word sh*t got in, I didn't mean it to be there at all, it makes no sense, and throat coat tea with slippery elm is a good tea for the burning of reflux, also I take two tums per day sometimes for burping which helps at about 10am. I work with a nutritionist doctor and have made my food 99% vegan with banana, hemp hearts, hemp powder, oatmeal, kiwi, dried mulberry, sourdough bread pecan butter, pumpkin seed butter walnut butter and some I make on my own with a food grinder I even grind my hemp seeds and I puree my einkorn, carrots, bok choy and fennel all cooked and weighed by the grams or ounces, I eat very little at a time, no more than 8 ounces, though my breakfast and lunch are more in weight, I eat very slowly. I hope this helps.

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Profile picture for cjj2 @cjj2

Hi, Laurie,
Thanks for the ideas. I never thought of putting the wedge pillow under the mattress. I’ll try that.
Thanks again!
Connie J.

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@cjj2 I use a wedge pillow and sometimes even a pillow under my knees. I still slide down through the night but not too far. I used to sleep all curled up in a fetal fasion until the need to sleep on my back became important. The wedge helps a lot, but I also stay up later so I'll sleep quicker and when I finally lay down on my back I do meditation and concentrate on feeling the whole of my back including shoulders touching the pillow. I ordered this: "Bedluxe Wedge Pillow Headboard, 3PCS Orthopedic Bed Wedge Pillows Set for After Surgery, Adjustable Pillow Wedge for Acid Reflux&Back Pain Relief, Sleeping, Back Pillow for Bed Sitting Up" from Amazon.

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Profile picture for naoshapiro1 @naoshapiro1

@naoshapiro1 Sorry for the two typos, I dont know how the word sh*t got in, I didn't mean it to be there at all, it makes no sense, and throat coat tea with slippery elm is a good tea for the burning of reflux, also I take two tums per day sometimes for burping which helps at about 10am. I work with a nutritionist doctor and have made my food 99% vegan with banana, hemp hearts, hemp powder, oatmeal, kiwi, dried mulberry, sourdough bread pecan butter, pumpkin seed butter walnut butter and some I make on my own with a food grinder I even grind my hemp seeds and I puree my einkorn, carrots, bok choy and fennel all cooked and weighed by the grams or ounces, I eat very little at a time, no more than 8 ounces, though my breakfast and lunch are more in weight, I eat very slowly. I hope this helps.

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Hi, Naomi,
Yes, I figured sh*t wasn’t the word you were looking for but it sure made me laugh. Autocorrect is goofy sometimes! The slippery elm throat coat tea sounds good. I’ll check with my pharmacist first. It sounds like you have found a routine and some foods that work pretty well for you. I think it’s very interesting & really appreciate that you’ve shared what you’ve learned from your healthcare providers and from your own experience.
Thanks, again,
Connie J.

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Profile picture for omaest @omaest

@cjj2 I use a wedge pillow and sometimes even a pillow under my knees. I still slide down through the night but not too far. I used to sleep all curled up in a fetal fasion until the need to sleep on my back became important. The wedge helps a lot, but I also stay up later so I'll sleep quicker and when I finally lay down on my back I do meditation and concentrate on feeling the whole of my back including shoulders touching the pillow. I ordered this: "Bedluxe Wedge Pillow Headboard, 3PCS Orthopedic Bed Wedge Pillows Set for After Surgery, Adjustable Pillow Wedge for Acid Reflux&Back Pain Relief, Sleeping, Back Pillow for Bed Sitting Up" from Amazon.

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@omaest
Hi, Omaest,
Thanks for your message about the wedge pillows, etc. Before the esophagectomy, I was most comfortable sleeping on my side or stomach because of postnasal drip. My goal is to sleep on my back at a 30 degree angle - one of the doctors was very specific about this. It seems like it would be a fairly easy thing to do but it’s been frustrating & very challenging. Thanks very much for the specific name of the product you found on Amazon! That helps immensely.
Connie J.

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Buy a couple landscape bricks at home improvement store put bed frame legs at headboard on top of bricks

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Thanks very much.
Connie J.

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Profile picture for cjj2 @cjj2

@omaest
Hi, Omaest,
Thanks for your message about the wedge pillows, etc. Before the esophagectomy, I was most comfortable sleeping on my side or stomach because of postnasal drip. My goal is to sleep on my back at a 30 degree angle - one of the doctors was very specific about this. It seems like it would be a fairly easy thing to do but it’s been frustrating & very challenging. Thanks very much for the specific name of the product you found on Amazon! That helps immensely.
Connie J.

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@cjj2 I'm on Medicare, so they paid for a hospital-style bed for me. The "bare-bones" beds are not that expensive, if your insurance won't cover it. Used ones frequently come on the market. I have a small inclinometer, which attaches to the bed frame magnetically. Each night, I turn it on and punch the decline button on the control and lower the head until the instrument reads 34 degrees. (I read in bed at a higher angle.) That's it. I've tried all the other methods, even a slanted mattress. Nothing has worked until this...

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For the first 3 years after my esophajectomy I couldn’t sleep through the night. I had always slept on my side or stomach. I purchase an adjustable bed, which only allowed me to sleep on my back. (My wife also didn’t care to sleep on her back)
I tried a couple of shot bed wedges, but I constantly found myself slipping/sliding down the wedge. When I tried sleeping on my side with the short wedges, my thighs would cramp up during the night. Two years ago I was on Amazon and found…. Avana super slant full length bed wedge $189.00. It’s been a life changer for me! It’s very comfortable and allows me to sleep on my side! Its about 7“ thick at the headboard, I place a pillow under it at headboard. During the night I have the option to slide one leg over side of the wedge (towards my wife).
I noticed today that Amazon now sells an additional 4” thick full bed wedge $124? Not really thick enough but maybe an additional option for some people.

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Hi, brianpj12,
Thanks for posting your message. This looks like an option that might work.
Thanks, again!

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Profile picture for earle @earle

@cjj2 I'm on Medicare, so they paid for a hospital-style bed for me. The "bare-bones" beds are not that expensive, if your insurance won't cover it. Used ones frequently come on the market. I have a small inclinometer, which attaches to the bed frame magnetically. Each night, I turn it on and punch the decline button on the control and lower the head until the instrument reads 34 degrees. (I read in bed at a higher angle.) That's it. I've tried all the other methods, even a slanted mattress. Nothing has worked until this...

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Hi, Omaest,
Thanks for posting your message. This is good information, even about the inclinometer.
Thanks, again!
Connie J.

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