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Sputum Test submissions and outcome results

MAC & Bronchiectasis | Last Active: Feb 26 7:09pm | Replies (81)

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Profile picture for mariegrace @mariegrace

@blm1007blm1007
I tried to take the 2 drugs for MAC but had to stop it after 7 weeks because of severe abdominal pain.
So we know I have MAC, that is pulmonologist explanation. No point in doing a culture.

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Replies to "@blm1007blm1007 I tried to take the 2 drugs for MAC but had to stop it after..."

@mariegrace
Did you take a probiotic and or have yogurt while taking the antibiotics? Some people do better by keeping the gut microbiome in good condition so that the antibiotics don't destroy the good bacteria etc. You may already know this???

If I ever 'have to' start antibiotics I will be sure to prepare myself for them a good couple of weeks before starting them by eating and taking everything to help while on the meds.......like a good and reasonable amount of yogurt to get the 'gut' ready for the meds and double up on the pure non altered food products .... that I do stick with now.....lots of vegetables and no sugar. Hoping I go a long time with not needing the antibiotics....there is a little luck factor in that due to 'things happen.'
Barbara

@mariegrace If you cannot take antibiotics, nebulizing with 7% saline is a form of treatment. Do you know the bacterial count? Have you had susceptibility tests done? Do you have cavities? And are you nebulizing 2/daily with 7% saline. I have never heard of being diagnosed with MAC and it not being monitored. When I went to NJH, they had done a CT and sputum cultures to test for Susceptibility with a number of antibiotics along with bacterial counts. They did not recommend antibiotic treatment for me since bacterial count was low and CT's stable. However, in situations like mine-they "watch and wait". I send sputum samples every 2-3 months to NJH and get low E CT's every 6-12 months.