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Profile picture for joeymopete @joeymopete

I was diagnosed with HOCM a little over a year ago when my primary care doctor Dr. Houston (Mayo, Red Wing) felt that I should have an echocardiogram for my shortness of breath symptoms. That test and a stress test showed I had HOCM and a record gradient of pressure on my heart as well as regurgitation of my mitral valve. I tried Metoprolol and Diltiazem but they did nothing for me so Dr. Ommen (Mayo, Rochester) offered me four options and told me to go with my gut. I did. I chose a myectomy through open heart surgery with Dr Rowse (Mayo, Rochester).
I know of no one in my family who had HMC. Many of my relative have had echos now including my grown children and so far no sign of it. I did the DNA test but I was not in the 17% of known genes.
I’m 73, fairly active, and a grandmas of five. I am seven weeks out from surgery, my shortness of breath is gone, my asthma symptoms are gone and though I still continue to build up my strength, I’m excited about my renewed lease on life.

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Replies to "I was diagnosed with HOCM a little over a year ago when my primary care doctor..."

@joeymopete You had your myectomy in December, seven weeks ago and I am so glad to read that you are doing well and are excited with your renewed lease on life! I, too, am among the people who have not shown a mutated HCM causing gene, perhaps when I get tested again in a couple more years, the naughty one will have been discovered. Your family is wonderfully proactive with echoes, have the doctors of your grandchildren been told of your HCM? My grandson (16) goes to a pediatric cardiologist every 2 years for an echo (unfortunately, his insurance will not pay for it), to be sure he is OK. Has your doctor suggested cardio rehab for his/her "fairly active" patient (you)?