I hesitate to reply since I am not a medical professional. All I can do is to relate my experience which I have been told is unusual. Six hours after my first and only infusion thus far, I was so weak and in so much pain I could not lift a water bottle with both hands. After 40 mg prednisone and oxycodone ( don’t recall the strength) I was much better the next morning. I had that first infusion Nov 9. Today I still have weakness and pain and it does affect my day to day activities. I’m currently on 2.5 mg prednisone and 400 mg hydroxychloroquine daily. I’ve been on three prednisone tapers which helped but the side effects aren’t gone, but certainly less than they were.
I have a surveillance CT scan in March and if there is cancer present I will reconsider.
Ask your doctor if there is something to take before the infusion in case the side effects are like mine.
I’d like to hear about your husband’s experience if you’re willing.