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Inhaled Amikacin and Clofazimine

MAC & Bronchiectasis | Last Active: Apr 5 6:45pm | Replies (26)

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Profile picture for notnancy88 @notnancy88

@reneemc you are correct about the clofazamine. I am presently on it for the second time since July 2023. I have had no issues with it except I have more freckles now and have a resort tan. I am very fair skinned so it’s nothing to be concerned about.

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Replies to "@reneemc you are correct about the clofazamine. I am presently on it for the second time..."

@notnancy88
I will be starting with the addition of Clofazimine within the next couple weeks. Current treatment is Arikayce inhaled and Nuzyra. I stopped taking Linezolid due to neuropathy in both feet.
Have you had any additional side effects of Clofazimine? Due to it being a clinical trial, my Infectious Disease Dr instructed me to report any side effects as soon as possible and said that I can withdraw from the drug trial if not tolerating it. I will need an EKG monthly and continued labs.
Best wishes for improved health.